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Life’s rollercoaster is running full tilt

Neither Stacy nor I have had much time lately to post in the forum or the diary. Her grandfather is terminal and we are barely keeping our heads above water with our daily schedules. We also learned last night that one of her uncles died from a heart attack a week ago - roughly the same time that her grandfather was admitted to the hospital.

The good news is that Stacy has not had any tonic-clonic/grand mal seizures even with the tremendous stress she is under right now. It’s a struggle right now to ensure that she is eating adequately and getting enough sleep. She has had some infrequent jerks - mostly while seated to eat, but we have not been keeping track of them diligently lately.

Stacy did manage to make her Neurofeedback session on Thursday. She is also strictly following her Dilantin schedule.

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