Comments on: A picture is worth a thousand seizures http://www.coping-with-epilepsy.com/blog/archives/55 Chronicling Stacy's treatment for epilepsy Thu, 20 Nov 2008 21:24:50 +0000 http://wordpress.org/?v=2.6 By: Bernard http://www.coping-with-epilepsy.com/blog/archives/55#comment-11881 Bernard Thu, 27 Sep 2007 14:23:59 +0000 http://www.coping-with-epilepsy.com/blog/archives/55#comment-11881 Hi Zoe. Stacy's doc takes periodic blood tests to monitor her vitamin/mineral levels. She also takes a multi-vitamin/mineral supplement in addition to a few specific supplements. Thanks for your comments. :) Hi Zoe.

Stacy’s doc takes periodic blood tests to monitor her vitamin/mineral levels. She also takes a multi-vitamin/mineral supplement in addition to a few specific supplements.

Thanks for your comments. :)

]]> By: Zoe http://www.coping-with-epilepsy.com/blog/archives/55#comment-11877 Zoe Thu, 27 Sep 2007 06:00:31 +0000 http://www.coping-with-epilepsy.com/blog/archives/55#comment-11877 Stacy, I know you and Bernard are leaving no stone unturned, but reading your log rings a few bells. I hope it is ok for me to jump in to do some brain storming [no pun intended!]. Have you looked at the nutrient depletions from dilanten and considered whether these may also lower your seizure threshold? This does happen and I've come across it in my searching. Vitamin D, B1, and folate are three that come to mind right off. The D deficiency will result because the drug speeds up the liver's metablism of vitamin D. http://www.qualitycounts.com/drugs/dilantin_phenytoin.html The deficiency is linked to poor absorption of minerals, which can also lower the seizure threshold. Folate deficiency will lead to an increase in homocysteine levels which may also lower your seizure threshold. B1 is the other one I have seen a medical study about, the deficiency linked to dilantin use, which may again lower the seizure threshold. <a href="http://www.ncbi.nlm.nih.gov/sites/entrez?Db=pubmed&Cmd=ShowDetailView&TermToSearch=15846704&ordinalpos=1&itool=EntrezSystem2.PEntrez.Pubmed.Pubmed_ResultsPanel.Pubmed_RVDocSum" target="_blank">vitamins for epilepsy</a> I had aspiration pneumonia several times from AED toxicity. The last time is what put me to the front of the line for brain surgery, which failed. I had coughed up so much stuff in my lungs the first x-rays made them think I had a tumor over my heart, three days in the ER to sort it out! I hope you will see some improvement with the neurofeedback. Zoe Stacy,
I know you and Bernard are leaving no stone unturned, but reading your log rings a few bells. I hope it is ok for me to jump in to do some brain storming [no pun intended!].

Have you looked at the nutrient depletions from dilanten and considered whether these may also lower your seizure threshold? This does happen and I’ve come across it in my searching. Vitamin D, B1, and folate are three that come to mind right off. The D deficiency will result because the drug speeds up the liver’s metablism of vitamin D.

http://www.qualitycounts.com/drugs/dilantin_phenytoin.html

The deficiency is linked to poor absorption of minerals, which can also lower the seizure threshold.
Folate deficiency will lead to an increase in homocysteine levels which may also lower your seizure threshold.
B1 is the other one I have seen a medical study about, the deficiency linked to dilantin use, which may again lower the seizure threshold.

vitamins for epilepsy

I had aspiration pneumonia several times from AED toxicity. The last time is what put me to the front of the line for brain surgery, which failed. I had coughed up so much stuff in my lungs the first x-rays made them think I had a tumor over my heart, three days in the ER to sort it out!

I hope you will see some improvement with the neurofeedback.
Zoe

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