Another status morning
Stacy had several seizures today:
- TC @ 5:38am
- CP @ 6:24am
- TC @ 7:02am (I called 911)
- TC @ 7:15am
- CP in ambulance ~ 7:40am
- TC in the ER ~ 8:15am
She finally stabilized after an Ativan dose and Cerebrex IV. Blood work showed her Dilantin level to be 9.6 on arrival the ER (which is just under the lower bound of the therapeutic range). She also had slightly elevated sodium levels but otherwise pertty normal blood result.
She got to bed around 11pm last night and woke up once at around 2:30am when I had to attend to our youngest child who needed some cough medicine. It’s been roughly a month since her last seizure and she was again just coming off of her monthly period.
She may or may not have cheated on her diet yesterday - I wasn’t with her for breakfast or lunch and she went with the kids to a kolache/doughnut shop in the morning and a fair/carnival in the afternoon.
Fortunately, she recovered sufficiently to be released from the ER (and didn’t have to be admitted to the hospital). She is now resting peacefully.
January 14th, 2008 at 1:47 pm
Stacy - I sure hope that you are feeling better today. Hugs from CA
January 21st, 2008 at 8:22 pm
I finally joined your site. Have followed Stacy’s story for months on a couple of different sites. My dd (age 13) has complex partials due to dysplasia. We started neurofeedback in late Sept., similar to Stacy. We continue with two sessions weekly, also. She is now on depakote, and coming off the ketogenic diet. Now we are mostly low carb. Some similar events to Stacy happening here, but holding out hope for both of them. What diet is Stacy on? Back before keto, Atkins did her as much good as keto….maybe more. We are watching glucose. I always monitored it on the diet anyway, and we are seeing some good things in conjunction with the neurofeedback and thermal training. Keep posting. Sharing info is so important!!!–fran
January 22nd, 2008 at 7:09 am
FranB - Stacy follows a “pseudo” LGIT diet. She does not restrict total daily carbs - just simple carbs.
Would you mind sharing your dd’s experience with diets and neurofeedback in the The History Book sub-forum? I’m always excited to hear about someone else who is trying EEG neurofeedback.