feelinghelpless
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My daughter has been diagnosed with traumatic brain injury epipelsy after being in a horrible car accident a couple months ago. She had several grand mal seizures for about 18 hours after the accident, had no seizures for 2 months and now is having seizures again. They were daily grand mal for about 10 days (up to 4/day), then none for 7 days, then had 6 back-to-back tonic seizures last night.
It has become a reality that this is our "new normal", but how do we "re-normalize" all of our lives? We have been scared to leave her alone, haven't let her go to friend's houses (or anywhere), but we know this can't last. She is a social butterfly and is already getting depressed by her diagnosis and not being able to socialize. Do we just suck it up and come to the realization that at some point she will have one while alone, so we shouldn't be smothering her?? Do we continue to keep her supervised for a certain period of time of her being seizure-free? Even when sitting on the couch, it seems she can hurt herself falling onto the floor off the couch during a seizure. If she's in the bathroom too long, my husband or I are banging on the door asking if she's ok...how do we give her, her privacy and keep her safe?
This is the scariest thing we have ever been through. There are so many unknowns and we feel so helpless. Any info or guidance is welcomed with regards to how to live day-to-day with a teenager who is newly diagnosed.
It has become a reality that this is our "new normal", but how do we "re-normalize" all of our lives? We have been scared to leave her alone, haven't let her go to friend's houses (or anywhere), but we know this can't last. She is a social butterfly and is already getting depressed by her diagnosis and not being able to socialize. Do we just suck it up and come to the realization that at some point she will have one while alone, so we shouldn't be smothering her?? Do we continue to keep her supervised for a certain period of time of her being seizure-free? Even when sitting on the couch, it seems she can hurt herself falling onto the floor off the couch during a seizure. If she's in the bathroom too long, my husband or I are banging on the door asking if she's ok...how do we give her, her privacy and keep her safe?
This is the scariest thing we have ever been through. There are so many unknowns and we feel so helpless. Any info or guidance is welcomed with regards to how to live day-to-day with a teenager who is newly diagnosed.