Coping With Epilepsy Neurofeedback & Counseling Associates
10% off neurofeedback training for CWE members - Las Vegas, NV and Denver, CO
Neurofeedback Partner - Free Advertisement
 

Go Back   Epilepsy Forum > Our House > The Foyer



Reply
 
LinkBack Thread Tools
  #1  
Old 03-01-2012, 02:32 PM
Getting Comfortable
 
Join Date: Feb 2012
Posts: 24
Thanks: 14
Thanked 6 Times in 3 Posts

?504-B for kids with absence seizures?


Hello,
I am fairly new to this, as my daughter was just diagnosed with absence seizures. She has had "behavioral problems" all year according to her kindergarten teachers. Many of the issues may have arisen as a result of my daughter seizing-in addition to being a very smart, social girl.

When we spoke with a neurologist we were told that she qualifies for the 504-B accommodation and the doctor recommends it.

We have decided as a family to try to deal with my daughter's seizures without the medication. We are researching alternative treatments.

So after that long intro-Has anyone dealt with this before? Does it help? Is it necessary?

Thank you,
Kelly
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #2  
Old 03-01-2012, 08:37 PM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 13,049
Thanks: 535
Thanked 4,997 Times in 3,853 Posts
Hi Kelly --

Have you looked at the Modified Atkins Diet? It has a good track record for helping with absence seizures. More info here: http://www.atkinsforseizures.com/

I don't know about the 504-B -- hope others will chime in.

Best,
Nakamova
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #3  
Old 03-01-2012, 08:42 PM
Getting Comfortable
 
Join Date: Feb 2012
Posts: 24
Thanks: 14
Thanked 6 Times in 3 Posts
Hello Nakamova,
Thanks for all your suggestions. I have looked at many of the articles and put a call into my daughter's primary care physician to follow up on some of the treatment alternatives.

Do you know much about absence seizures? Do you have epilepsy?
Thanks,
Kelly
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #4  
Old 03-01-2012, 08:47 PM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 13,049
Thanks: 535
Thanked 4,997 Times in 3,853 Posts
I don't get absence seizures, just the tonic-clonic variety. But CWE has a fair number of members who do get absences, so they may post when they get a chance. You can also search for info in the archives using the "Search" tab in the top menu bar.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #5  
Old 03-01-2012, 08:48 PM
Getting Comfortable
 
Join Date: Feb 2012
Posts: 24
Thanks: 14
Thanked 6 Times in 3 Posts
Thank you
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #6  
Old 03-03-2012, 06:20 AM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,865
Thanks: 170
Thanked 706 Times in 538 Posts
Send a message via Yahoo to RobinN
A 504 plan is a safety net between you and the school. What it does is document your child's medical situation, and you and your doctor make recommendations / requirements for the school to follow.

I am not sure how a 504 is different than a 504-B

It is a very helpful document for a parent to have. It allows for medical accommodations for your child during school hours. As you move into higher grade levels you need to learn about an IEP - Individualized Education Plan which are accommodations for the academic requirements. You will have annual meetings with the school, (teachers, administration, and specialists). If you can afford it, you can hire an advocate to go to these meetings with you. I found with some research, I was able to manage the meetings just fine, as long as I had a patient, open mind. You will need to advocate for your own child though. Request what your child needs, which can always be adjusted.

As a parent, I would highly recommend that you ask for both a 504 and an IEP.
__________________
Robin

Neurofeedback - Rebecca's Story

Robin's Challenge

Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #7  
Old 03-03-2012, 08:56 AM
Getting Comfortable
 
Join Date: Feb 2012
Posts: 24
Thanks: 14
Thanked 6 Times in 3 Posts
Thank you Robin.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #8  
Old 03-03-2012, 09:27 AM
Joined the Party
 
Join Date: Jan 2012
Location: NY
Posts: 96
Thanks: 18
Thanked 7 Times in 7 Posts
My daughter has a 504 for auditory processing disorder. It is just something, on record, that states there is a situation with your child that requires special accommodations. It is VERY much so needed. It would help the school place your child with the best teachers for their needs, make sure substitutes are aware of the situation, and "force" the school to make adaptations she might need(like extra time to complete her work).
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #9  
Old 03-03-2012, 09:33 AM
Getting Comfortable
 
Join Date: Feb 2012
Posts: 24
Thanks: 14
Thanked 6 Times in 3 Posts
Thank you. We are for sure going to do it for the fall. Her teachers this year have not been exactly sensitive to her needs and I feel like it would be a waste of time to get it implemented. I am hopeful that with the next teachers we will see a marked improvement in safety and sensitivity.

Thank you for all the great support and suggestions.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #10  
Old 03-03-2012, 02:21 PM
Kaitybugsmom's Avatar
Weaving the Community Fabric
 
Join Date: Mar 2012
Location: Oregon
Posts: 203
Thanks: 28
Thanked 50 Times in 35 Posts
504 is wonderful. Part of what it can do is mandate that all the teachers in the school go through some sort of epilepsy training so that they are aware of the different types of seizures and what to do before, during and after. As your daughter moves into higher grades that 504 moves with her and gets adjusted as situations change..allowing her more time to complete assignments if necessary. Allowing her to retake a test without penalty should she have a seizure during the test. It will also allow for absences due to seizure activity or related appointments to not be held against attendace. Its so beneficial to have. Good luck.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #11  
Old 03-03-2012, 03:32 PM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,865
Thanks: 170
Thanked 706 Times in 538 Posts
Send a message via Yahoo to RobinN
You need to request this accommodation ASAP.
If something were to happen, your wishes, how you want it taken care of are documented.
From bathroom expectations, to playground rules, to nutritional needs, or rest time after a seizure.

There is a lot of paperwork, and necessary testing (for the IEP)... so get this started now, so that you do no have to be in limbo in the fall. You are also more likely able to request a teacher, but you will have to have specific reasons for doing so.
__________________
Robin

Neurofeedback - Rebecca's Story

Robin's Challenge

Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #12  
Old 03-03-2012, 03:40 PM
Venerable Voice of CWE
 
Join Date: Dec 2007
Location: PA.
Posts: 1,585
Thanks: 252
Thanked 137 Times in 112 Posts
Since your daughter is fairly smart, I would force the school to provide her with a High School Diploma rather than just a certificate. There is a big difference.

Please keep the neurologist involved throughout the process.
__________________
__________________________________________
WARNING: Humor may be hazardous to your illness.
-Ellie Katz
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
Reply

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
ABSENCE SEIZURES including ATYPICAL ABSENCE SEIZURES / EPILEPSY brain Back Fence 32 12-24-2013 09:55 PM
Absence Seizures? Blue Eyes The Kitchen 7 01-18-2012 04:08 PM
Absence seizures...how many??? hootie The Nursery 2 06-09-2010 06:08 PM
Absence Seizures Deb12345 The Kitchen 4 09-28-2009 11:49 AM
absence seizures klkerber The Foyer 17 04-29-2009 02:53 PM


All times are GMT -5. The time now is 04:24 AM.


Powered by vBulletin® - Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.