Coping With Epilepsy Lennox-Gastaut Syndrome Foundation
Free Advertisement
 

Go Back   Epilepsy Forum > Our House > The Foyer



Reply
 
LinkBack Thread Tools
  #1  
Old 04-07-2011, 01:36 PM
New Here
 
Join Date: Apr 2011
Location: Texas
Posts: 1
Thanks: 1
Thanked 0 Times in 0 Posts

Allergies and epilepsy! Is it safe to take decongestants or prednisone?


I really look forward to your input. I never had a seizure until i was 3 weeks shy of turning 34. I have generalized epilepsy, so not sure why it took 34 years to have my 1st seizure, but thankful nonetheless. I had 3 grand mals, full tonic clonic, which were stopped in the er. I went 2.5 years in between rounds and had my 2nd series of seizures, again 3 grand mals, full tonic clonic, again stopped in the e/r. I only went 8 months this last time in between rounds and i am praying we finally got the meds/dosage right. But this last time i had 4 seizures, but i think the nurse took her time to get my meds in me to stop it! They always wait until they see it with their own eyes, after i have ground up my tongue! I take keppra xr 1000mg in am, 1500mg in pm for 2500mg total. After this last round, my epiliptologist added klonopin because my anxiety was through the roof (because i had just had an eeg in february and was assured we had this under control) and the klonopin was good for seizures and it helped me fall asleep. (i was a night owl, not good for seizures either!) so, i have noticed my major triggers are lack of sleep & stress. I never ever forgot my meds, so we have upped them each time i have another round. (i started off taking dilantin, but changed after my hair began to fall out) my biggest problem is allergies and what meds i can take that won't trigger a seizure because it is just too difficult, i have 2 boys. One is 6, one is 13, with down syndrome. My plate is full, so no driving for 6 months throws a wrench in the program. I am just having the worst year ever with my allergies and had a seizure the night after taking a steroid shot, so my docs shy away from giving me any steroids. But this time, my epileptologist says to take the decongestant, my neurologist says take decongestant and prednisone. Of course i am on allergy shots, i take flonase/nasonex, zyrtec, mucinex to keep the mucus thin, but i cannot breathe, and it is hard to sleep which can cause a seizure! Just wondered if any of you have dealt with allergies and taking decongestants and steroids. Any help would be greatly appreciated! I do have epileptic friends that can take both and wont' have a seizure, but i can't take the chance. But i'm getting close to taking 1/4 pill of the prednisone because i am miserable! Help!!!
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
  #2  
Old 04-07-2011, 06:17 PM
Endless's Avatar
Super Moderator / Even Keel
 
Join Date: Feb 2010
Location: U.S.
Posts: 4,485
Thanks: 821
Thanked 1,224 Times in 949 Posts
Send a message via AIM to Endless
Hello, and Welcome!

I have allergies too, and am on weekly allergy shots, nasal spray (Astepro 0.15%, 2 sprays in each nostril 2x/day) to keep the nasal swelling down. When I get bronchitis it often means predisone to help prevent pnumonia, which I've had 5 times, despite having the vaccine.

Astepro seems to bother my seizures and the CSF pressure in my head the least. Some, like Fluticasone Propionate, I had a rough time with - I think it increase both the CSF pressure in my head, and my seizures. For nasal swelling I try to just take a local med (spray) that doesn't enter my body as a whole much, so doesn't have as much of a chance to trigger seizures.

I had sinus surgery to make it easier for my nose to drain, which has helped. And it removed the bump on my nose and made it straighter again. Looks much better!

Predisone - it's not a drug anybody takes just to make them feel better. It is to avoid a health crisis or to help heal it. If it is to avoid a serious asthma attack, or heal a tough infection, I kind of think we have to go for it. Or we'll end up with something muh worse than a seizure, or that provokes seizures much more than the prednisone would have in the first place.

Do a cost-benefit analysis for yourself and see if you choice is clear. Mine kinda was.
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
The Following User Says Thank You to Endless For This Useful Post:
amytraweek (04-12-2011)
  #3  
Old 04-07-2011, 07:52 PM
Super Moderator / Thank You Queen
 
Join Date: Jun 2005
Location: Massachusetts
Posts: 13,091
Thanks: 537
Thanked 5,027 Times in 3,873 Posts
Hi amytraweek,

I don't have allergies myself, so no advice to offer I'm afraid, but I wanted to say hi and welcome you to CWE! I also had my first seizures when I was 34, so I can relate to that weirdness. One quick question -- have you been tested for sleep apnea? It sounds like both breathing and sleeping at night are hard for you. There is some connection between sleep apnea and seizures, although it's not entirely clear which comes first.

Best,
Nakamova
Add Post to del.icio.usStumble this Post!Reddit!
Reply With Quote
Reply

Tags
allergies, decongestant, prednisone, pseudoephedrine, sudafed

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
Food Allergies a Cause for Seizures? Bindi The Kitchen 6 02-14-2014 11:21 AM
Has anyone been prescribed Prednisone to treat their Epilepsy? forward2007 The Kitchen 3 08-13-2010 11:27 PM
allergies.... skillefer The Lounge 6 12-18-2009 11:28 PM
[Info] Food Allergies RobinN The Library 9 11-10-2009 10:01 AM
Safe Travel With Epilepsy????? Shutterbabe The Library 15 12-12-2007 01:42 PM


All times are GMT -5. The time now is 04:40 AM.


Powered by vBulletin® - Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 Measuring Up. ALL rights reserved.