Dravet Syndrome

[alara]

Hi,
My one year old doughter Alara has ben diagnosed as dravet syndrom. If there is any one who is involve in this syndrome please keep in touch to share the experiences with us.

Best Wishes.
Arzu (From İstanbul/TUrkey)

[Bernard]

Hi Arzu, welcome to the forum.

There is another member here with a child with Dravet's Syndrome:

dravet syndome

[stilldancing_98]

Hi Alara, it is tough huh? Welcome here. The only thing I can tell you is that my son has the myoclonic seizures with regression and delay.One kidney,his seizures seem to be changing. He did not talk until he was 4 and full sentances until he was six. He then regressed and relearned.He is 9 now and has more testing to do.I so know how tough this is.I am with you all the way.