Momof3boys: So what did they do? Did they ever find out what's going on with ya? We're the doctors mad when you proved them wrong?
Well, I was referred to this psych dr by my neurologist. When I went to see this psych dr, she asked why I was there? I assumed my neurologist had sent over my records, but apparently he didnt. So I brought up the VEEG, and how some of the seizures that I had didnt register, and that my neuro thought they were non epileptic seizures. She asked if I ever had these seizures before? I explained ive had complex partial seizures and grand mal seizures my entire lifetime. My last grand mal seizure being in 2001, so it was 10 years ago (at the time I saw this dr) and then the complex partials, my last was around the time my second son was born. I think. Anyways, I started out by saying Ive never been "cold turkey'd" off any seizure medication in my life before, and thats what this dr did. I had taken my last dose of Carbatrol and Keppra the night before I was admited, and that morning after being hooked up for the VEEG, my dr comes in to tell me I wont be having any medication at all! The psych dr was very suprised that my dr did this. Especially suprised that he didnt take into account how the body would respond with going for all those years, practically my whole life.. at the age of 18 months I was put on medication for seizures. Then one day just quitting. No cutting back, just stopping everything at once. Then to find out that after being put back on the Keppra, everything went away. Where as she told me if they were non epileptic seizures, they wouldnt be able to be stopped by anti seizure medications. If they were seizures caused my "anxiety" how my neuro thought they were, (why he thought that, I have no clue, since I told him Ive never experienced anxiety problems in my life) then I would be having these seizures when I was stressed out over things, or they would be happening despite the fact I was on Keppra. But since being put back on the Keppra, I had small seizures the first few days after getting back on the keppra, then they all went away. So that there, along with her getting the EEG results, which she could see the epileptic activity on the EEG, said that what he was seeing on the video, and it not registering as epileptic seizures, was probably due to the fact that they were so deep in the brain, the EEG didnt pick them up. Also to point out, that after being on the Keppra, they all stopped. Those two things pointed out to her, said they were in fact not non epileptic seizures. She said she would point this out to the dr. It was around June/July 2011, (about three months after getting my VEEG done) that I last saw her. I then saw my neuro in August of 2011, at my last appointment, and he said he was fine leaving me on the Keppra. I asked in May to be switched over to the Keppra XR due to it causing alot of headaches. and Ive been on that since. He did bring up at my last appointment how he would like to "wean" me off of Keppra again. Something I dont want to go through again. But, so far I have yet to hear back from his office. I guess they are relocating and they had to "reschedule" all of his appointments. So the appointment I had scheduled for august 31, 2012 had to be canceled and Im waiting to hear back to see when they can fit me into his schedule. Other than that, I didnt see any reaction on his face the last time I saw him, as to his response from the psych dr. I didnt want to bring it up, but I just said that since he referred me to her, (the psych dr) she concluded that I was not having non epileptic seizures. He didnt say nothing to that. So the only thoughts that came to my mind were these... 1) he is either thinking she is wrong and he is right.. and didnt want to bring it up... or 2) he was too embarrassed to bring it up knowing that the psych dr didnt see them as non epileptic seizures. who knows. All i know is that Im doing great now. As long as I get the rest I need, I dont get any seizure activity.
They can plainly see that I have left temporal lobe epilepsy, and the keppra is doing the trick my controlling the seizures.
