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Old 12-11-2009, 11:52 AM
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Question Feel like a seizure will come on but nothing happens...


Just a quick question, does anyone else feel as though they are going to have a seizure but don’t? I say this because when I heard voices a couple of times before a tonic-clonic, I knew I was going to hear voices because my ears had a weird sensation in them i.e. like a pressure build up, and I would feel strange. Since I have been on my tablets, I still get the funny pressure build up in my ears as though I am going to hear voices and have that strange feeling as though something will happen but nothing does. I am guessing this is a sign that my epilepsy tablets are keeping my tonic-clonics at bay. Any info. about above will be appreciated. Thank you. Best Wishes Debbie
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Old 12-11-2009, 12:06 PM
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One time I felt a tonic clonic coming on, I was tensing up, my brain was feeling really weird, and my hearing ceased and all I could hear was a high pitched squeal. Then it suddenly stopped and I could hear the music again, and I was very very confused and barely made it home after. Mostly my tonic clonic's are nocturnal so I don't have a lot of experience with them while awake.

I don't really know why it happens - sometimes they stop, other times they don't..
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Old 12-11-2009, 10:48 PM
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I've had that happen to me, usually when I focus just right. Other times I think it's an aura that doesn't gain momentum to become a seizure.
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Old 12-12-2009, 07:49 AM
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Have experienced something similar since my medication has been increased. Its as if I am caught between a simple partial and a complex partial, like i've moved beyond the simple partial but not quite into the complex partial. It's a horrid feeling.
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Old 12-12-2009, 12:51 PM
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Deb,

On occasion I still have the sensation that I'm going to go into a seizure, but it doesn't happen. It's actually an aura, which is still considered a simple partial seizure. I have the VNS and can now keep the actual complex partial or tonic clonic seizure at bay with the magnet.
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Old 12-13-2009, 12:56 AM
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Hi Cint,

You might be able to help me with this.

Are you saying that it is still a simple partial, as for me it is different to my usual simple partial seizures. It's worse and I wish it would just go into a complex partial and be done with it!

Your thoughts on this would be appreciated.

Roo
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Old 12-13-2009, 10:03 AM
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Roo,

My neurologist has always told me that an "aura" is considered as simple partial seizure, or the feeling, warning like I'm going into a complex partial seizure. For me, the aura feels like things start slowing down, sort of like slow motion you see in movies. And everything gets so loud I can't stand to hear it. Then I would go into the complex partial seizure and didn't remember the rest of what happens.
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Old 12-13-2009, 10:36 AM
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I too have been told that the aura is actually a simple partial seizure. I get simple partial's on their own and i can never remember if I have had an aura (simple partial) before my complex partial seizures. It's usually one or the other as far as I can tell.
From what you have said I think things have taken a bit of a turn and my simple partials are evolving - not all the time, but there is certainly something funny going on.

Thanks for your help, Cint
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Old 12-13-2009, 05:42 PM
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Thank you all for your posts. Being so new to E. I am never quite sure if I am experiencing a simple partial seizure or not because I am so used to having visual partial seizures than anything else and when I do have a strange feeling come over me I am never quite sure whether it’s normal or not. I have kind of given up doing a seizure diary because I think I am probably writing things down which aren’t anything to worry about. I was typing things down nearly everyday. I think I worry too much. I just hope when I have my week EEG scan in January, if I am having lots of simple partial seizures or any other type of seizure (other than tonic-clonic, which touch wood are being kept under control at the mow) that it will pick them up, so I know it's not all in my mind and there is actually something going on, when I have a funny feeling. I hope you understand the above. Thank you again. Kind Regards Debbie.
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