hello

[leonard]

hello and i am glad i found this forum im really searching for some more answers all the time but sure everybody is too so any help is always great my son of four years old has partial or absence type seizures about 8 of them since he was two they said it was fever type the first three and thought it was blood sugar type but seems ok there . please read my profile and if anyone has had or no of these types of seizures any info would be helpful. thank you and once again hello to all. leonard

[Bernard]

Hi Leonard, welcome to the forum.

Do these episodes occur before he takes a bite of dinner, or after he has started eating?

I'd highly recommend you start keeping a diary of everything he is eating and drinking along with his seizure activity. It's possible there is something in the diet - lunch, snack, drink or dinner - that is triggering the episodes.

[TeeTees]

Hi leonard,

First and foremost, welcome to the site.

I'm not sure on your son's condition, but maybe somebody else on here has witnessed/experienced the same ? I'm sure they'll be along soon to give you a better insight, and reassurance too.

As Bernard put, it would be a good idea to keep a diary of what food types, or other situations which appear to trigger your son's problems. Maybe being a li'l four year old, his diet could consist off too much sugar ? (just a thought)

[Birdbomb]

Welcome Leonard

There are many parents here so you should feel right at home in no time!

[leonard]

no its not a sugar problem weve had him on a low carb low sugar diet for about 8 months and seen a endocronologist he said there wasnt a problem with we checked his blood sugar for a week and kept log just before we seen him. was getting ready for nuro again then it happened.

[leonard]

we will try the log on foods eaten mabey there is a link to it. thanks and also i still think it might be a blood sugar deal. look forward to more info leonard

[Bernard]

There are other food issues that can potentially trigger seizures besides just sugars. The log should help you spot any patterns.

[brain]

Leonard!

Welcome to CWE!

1) Sugar-free foods can be a problematic
issue for children

2) Chron's is also another issue (dairy
products)

3) Food allergies

4) There are foods that can trigger seizures
aka Reflex Epilepsy / Reflex Seizures

5) He could have a Dental problem or
exposed nerve(s) in his teeth that could
result reaction to such behavior; even a
hidden unseen cavity or abscess.

6) He could have a blockage where it's
triggering vertigo when he eats, same
way when people who have clogged sinuses,
ear infections, etc - and on airline flights or
high altitudes where an ENT (Ear Nose Throat)
Specialist may be needed; and yes that could
provoke seizures.

A whole lot of avenues to look into, but if
it's the same thing that's happening, in other
words - Same old, Same old - then it really
needs to be looked into and you need to really
log a journal or diary.

Hope this helps - and remember this above
list isn't exhaustive, just a few things to look
into to give you an idea of the wide-span
perspective of the huge horizon.

And so sorry your son is having to experience
all of this!

[RobinN]

Hi Leonard! Welcome
I am also a parent... of a 16 yr old. I know your frustration very well. My daughter has had tonic clonic type seizures, for the past 1.5 yrs.
The journal or calendar of events and such is a powerful tool to have. I must look at ours weekly to figure out what is happening. You know there are also allergies to foods that can trigger seizures. Be careful of too many processed foods, as there are some ingredients that are know to trigger them.

I hope you find some more ideas here. It is filled with great information

[leonard]

hello today, and once again thanks for the input. the last time this happened it was a little different he stayed up late till 11:00 usually goes to bed at 8 no later than 9 he stayed at his grandmas house and woke up at 5 in the morning with his pappy usually sleeps till 7 then didn't want to eat anything and asked for his grandma pappy said she was asleep did this twice then when grandma woke up he didn't respond to being told she was awake went into the spell they then took him to ER and we met them there he seemed alert when we got there but kinda tired, he slept for about an hour then woke and wanted to leave . the ER doctor said it was a partial complex type seizure and that we should see the nuro. and thats what we were getting ready for when the last one happen. leonard

[RobinN]

Interested to hear your neurologists ideas on this one. Hope they don't just hand you a prescription to fill.

[Bernard]

Sleep (or lack of it) can be very powerful seizure trigger. Stacy (my wife) has a lot more seizure activity when she isn't getting a regular 9 hours of sleep every night.

[leonard]

thats what they want to do at this point, sent home a diastat dosagefor now waiting to see how long before the next one happens. leonard

[leonard]

what about too much tv or some of these new tv shows is there any link to that at all, well looking in any direction right now, started a diary of his foods today and will see when or if it happens again mabey there is a link to something there. two times that this happened we noticed it coming. first time put a cold cloth on him he started coming right out of it then the other time we were at the water park about 4 hours playing hard had ate food there and towards the end he looked like it was going happen left the park and got him in the car and had ac on and he came right out of it on way to ER and then took a nap we went home and that was it, no puking either time just cooled him down and that stopped it. dont now if that was seizure activity or what. leonard

[leonard]

is there any listing of different foods an preservatives that have been known to trigger seizures, and if so is there a link from here. and also is there any anti-epileptic drugs that dont have lots of side effects or is it all based on the individual person dont really want to put him on a med but worried that if we dont he will get worse. looking into the alternatives thanks for the link bernard. we see his ped today and see what he has to say about it. leonard

[Bernard]

is there any listing of different foods an preservatives that have been known to trigger seizures, ...

I listed a few here: proactive prescription for epilepsy

[leonard]

ok here i am again my son just had another one of his so called seizure episodes again on last saturday ended up in hospitol fo two day only to find out that he might be haveing abdominal migraines(basiler artery migrain) and given elavil to hopefully prevent this from happining again. now we got to start him on it. has anyone heard of this before. and what about elavil for kids

[RobinN]

http://www.drugs.com/mtm/elavil.html

Guess they are using it for a different reason than what it was intended for. It is an antidepressant. If it were my child I really would do some research before sticking a 4 yr old on a heavy drug like this. Obviously you need to work with your doctor, but be informed as to what you are giving him.

Hope he is doing okay this week.

[Bernard]

Hi Leonard, nice to see you back again, though I'm sorry to hear about your son's seizure activity.

I responded to your other post on the subject.

[Bee91]

I was put on Elavil for Migranes. It does work well but it takes some time. But I was 15 when I was on the drug. I have no idea how it affects younger children. Sorry. I do think it lowers the threshold of seizures though...I was on this med before I had many seizures, but one of the doctors I went to told me that it can cause you to have more seizures.