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#1
12-12-2007, 07:59 PM
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hello to allHi all, My husband was just diagnosed with temporal lobe epilepsy, so I'm here to absorb what info you all have, and to have some of my questions answered. Hopefully, he'll be joining too! Diane    |
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#2
12-12-2007, 09:16 PM
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| I am going to Welcome you again here Mooselips. My daughter Rebecca is 16 and has been having seizures for 1.5 yrs. I have found comfort here at CWE as well as a bunch load of new information. It is good to have this knowledge to make intelligent decisions. I don't like to be at a loss for words around doctors. |
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#3
12-12-2007, 10:40 PM
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| Hi Diane, welcome to the forum.  Make yourself at home here. 
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback Would you like to help support this forum? |
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#5
12-13-2007, 12:37 AM
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| Diane! Welcome to CWE! I need a total head transplant! Do you know where I can get one?  Stick around and you can learn a lot by hanging around but one word of warning ... it's addicting in here! 
__________________ Sharon Advocate & Member of  Head Storms - Resource Center "Vujà dé - the feeling you've never been in here before!" |
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#6
12-13-2007, 02:43 AM
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#7
12-13-2007, 08:20 AM
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| Thanks for the warm welcome. This morning I was wondering something..does dilantin cause big mood shifts? We seem to have a communication problem for the last few weeks here... or just plain irritable-ness. Brain transplant? Gosh, I do believe I heard they were doing a 2 for 1 special at the Cleveland Clinic....maybe we could sign up...I could use one too! |
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#8
12-13-2007, 09:38 AM
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| Originally Posted by mooselips  :
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback Would you like to help support this forum? |
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#9
12-13-2007, 03:25 PM
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| Originally Posted by Bernard :
But unfortunately, Moose is right, Dilantin / Phenytoin can cause some moodiness in some people and usually is a sign of too high levels or overdose or in toxic range, it's rare - but can happen. I had this slight problematic issue when I was on Dilantin on 900 mg (300mg x 3) a day for my height, size and weight. I was way over the toxic range. I had to be cut back a little bit; I usually run on 400mg / 500 mg alternate, but there were times I would be 600 mg. BUT 900 mg daily? GEESH! ========================= And MOOSE? About the 2 for 1 special? Are they NEW or USED?  
__________________ Sharon Advocate & Member of Head Storms - Resource Center "Vujà dé - the feeling you've never been in here before!" |
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#10
12-14-2007, 10:08 AM
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| Well, I don't think we're dealing with toxicity at this time anyway, he's is on a good dosage for his height/weight. 300 tid. I think it's a combination of KNOWING you have a "scary" disease, AND the isolation, AND giving up ALOT of independence, AND having to rely on others. It sucks for him, ya know? (I am sure you all know!) Oh the brains! I found a picture..let me know if you're still interested. |
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