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Old 01-17-2008, 11:06 AM
WorriedMom's Avatar
Getting Comfortable
 
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Hello all


Hello there everyone,

I am a mother of an 11 yr old who suffers from multiple types of seizure disorders, Myo-Clonic , absence, tonic clonic and possibly Progressive Myoclonic.


Ive got a ton of questions and im looking for support and possibly some answers , Thank you very much for allowing me to come and vent .

Jane
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Old 01-17-2008, 12:15 PM
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Smile Welcome Jane!...


You are among friends!
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Music\auditory Stimulus and the Epileptic Brain...List of music/epilepsy related links...CWE Members can also visit Speber's Auditorium where they can vote on how different music affects them in simple polls.
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Old 01-17-2008, 02:16 PM
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Hi Jane, welcome to the forum.

I answered your thread in The Kitchen.
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Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback
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Old 01-17-2008, 02:21 PM
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Welcome! There are other parents here who share your worries. I am sure they will be able to give you advice.
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Littleton, CO USA!
myspace.com/kdawnlee
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  #5  
Old 01-17-2008, 03:00 PM
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Thank you , Bernard, Speber, and Wonderdogs,

I replied to you ( Bernard ) In my Kitchen post
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Old 01-17-2008, 06:53 PM
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Welcome WorriedMom

We have lots of parents in the same situation. You will find tons of information and support here.
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"If you are going through hell, keep going."
(Sir Winston Churchill, 1874-1965)

Work like you don't need money,
Love like you've never been hurt,
And dance like no one's watching.
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Old 01-18-2008, 12:10 AM
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Hi Worried Mom... we can have a worried round table. I will put the pot of coffee on. No one ever taught us how to handle this sort of situation. Makes it seem kind of silly that we got nervous over a cough.

Breathing helps. There are a few threads here that talk about relaxation breathing. It is used for some people when they feel a seizure coming on. I subscribe to it for parents just to get over the rough spots.
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Old 01-19-2008, 10:29 PM
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Thumbs up Welcome!


Welcome to CWE, Jane!

Feel free to ask away, Jane...we'll do our best to answer any questions you may have, or point you in the right direction to the answers. Bernard, Birdbomb, Brain, they're all pretty smart.......and full of good sources too. So are Robin, Speber and Zoe. I can even come up with some good stuff too, once in a while.

When it comes to ep, KNOWLEDGE IS POWER. Sorry, it's my personal mantra. But, it's true. The only dumb question is the one that's not asked, I think. So ask all the questions you want. We'll be here for ya.

Take care, and good luck,

Meetz
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Old 01-21-2008, 02:44 AM
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Hi Jane! Welcome to the forum! This group is really friendly.
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"Watch your words, for they become actions.
Watch your actions, for they become habits.
Watch your habits, for they become character.
Watch your character, for it will become your destiny."
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Old 01-21-2008, 07:52 AM
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Jane!

Welcome to CWE!

Shall I have simple partial play "Don't worry,
Be Happy"?

Glad you're here - browse around
and you'll find others in the same
situation as you are; and the more
you find, the more of comfort for you;
PLUS - the more you'll learn!
__________________

Sharon

Advocate & Member of


Head Storms - Resource Center
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  #11  
Old 01-23-2008, 04:16 PM
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Pleased to read you.
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