hello from waralan

[waralan]

Hi everyone. This is my first visit to this board. I have had epilepsy for about the last 25 years. For what it is worth, I spent 23 years working at a state run school for the mentally challanged, hands on hands. Many of the the clients had seizures.
However, getting back to myself, I consider myself as a depakote junky.

[POSITIVEPERSON]

Hi Warlan: Welcome to the board ,Nice meeting you!!!!!!!!!!!!! I am glad depkote works for you, it worked for me but wrecked havoc on my body and matablisium and hair.
After 39 yrs I ran out of meds and tried homeopathy and very happy with that. I got down to one tab of mysoline and homeopathy. Eventually I became toxic on the 1 tab of mysoline and statred the Gard diet and than dropped the last tab of mysoline. 41 yrs and finally free of meds. I never believed that would happen. If you have any questions feel free to ask on the board or in a PM.
Again welcome to the board!!!!!!!!!!!
Riva

[waralan]

Hi, positive person, Thanks for the warm welcome. Please forgive me if at times I seem to be talking more medical than I should. However, my vast experience and my life has often taught me to say more than I should.
At times I need to tell myself to shut up and listen to others.

[POSITIVEPERSON]

No You Don't Need To Shut Up, The Boards Are Here To Exchange Information And Help Each Other!!!!!!!!!!!!!!! So Please Share Your Knowledge !!!!!!!!!!!

Riva

[waralan]

To all, thanks for the warm welcome.

[brain]

Waralan

Glad to have you here, and no by
all means, do not shut up! You are
more than welcomed to post!

[waralan]

Hi, If I were to stand in your midst today, you would think that surely there is nothing wrong with me.
Yes my meds: depakote, dilantin, and phenobarbitol, along with my use of vns does wonders.
But my memory is made of mush. Any suggestions on I can do to help mysel?

[Bernard]

Hi waralan, welcome to the forum.

EEG Neurofeedback can be helpful with improving mushy memory.

[waralan]

Thanks Bernard, I will have to try that
Wally

[POSITIVEPERSON]

Warlan didn't the dr lower your meds with the vns inplant? Have you discussed that with him? When I had the vns inplant the dr lowered my meds to half .

Riva

[waralan]

What type of homeopathy do you use?

[POSITIVEPERSON]

My first year on homeopathy I used Silicia.
My second year the lady who took care of me stopped coming to Portland, so I took alot of books out of the library and read them, researched on the net and switched the med to treat my epilepsy and my underactive thyroid. I now take Calc. Carb

I also have in case of emergency instead of taking ativan to stop a seizure I have
Hyoscyamus NIG.

Riva

[waralan]

I am getting a bit sick of taking all my meds, with thier price and all
As far as getting help, I fall between the cracks, poor enough to need help, but making enough not to qualify.

[Bernard]

Well, there are some alternative therapies/treatments you can try (including diets, neurofeedback, CBT, etc.). See the chart in my signature for details.

[waralan]

Hi, does any anyone know about the substance used to treat myclonos? I suffer from myoclonic epilepsy.

[POSITIVEPERSON]

When I left NYC I dropped my BCBS it was 650 dollars a month for me and 550 for my husband and we just couldn't afford it anymore. I arrived in Portland without insurance and was hoping to pick it up and never did.

So I went to the gp for my perscriptions for the epilepsy meds until my body had no meds left to take . Than I was looking thru the free alternative newspapaers and saw
advertising for the homepathy dr and called her twice and finally made an appointment.
I started my monthly treatment and never looked back. Once I started the homeopathy I weaned myself off the meds monthly. It was great not having to buy anti-epileptic drug's on a monthly basis. What a saving!!!!!!!!!!

If you want alternative treatment you can look for a homeopathy school in your state so they will discount you. I did that in NYC with acupuncture and in Portland too.

Wishing you the best of luck, but you must remember to pace yourself when you wean off the meds 1/2 tab a month . SLOW IS THE MOTTO.

And if your body is so use too one med you may have to go for acupuncture to help you wean off it. I had to do that with mysoline.I had the shakes till I went for the acupuncture. I always found acupuncture to be very helpful !!!!!!!!!!!

I also use these patches everynite on my foot to cleanse my body of toxins . Check out the web site www.verseo.com
Your looking to check out the premium detox foot patches

Riva

[waralan]

Positive person, Thanks for the advice. I am being nickled to death by the rx prices.
I am supposed to be certifided for medicare, but since I worked for the School for so long, I would lose the benefits it I did.
I mean medicare part d. medicare is my primary careare and blue cross/blue shield is my secondarily one.

[POSITIVEPERSON]

To be perfectly honest I think you would be best to do the diet and the homeopathy.

All the pple in the health food stores think that the smartest move I made combining the two.

If you have any more questions you can post on the board or pm will be happy to help
you out in any way I can.

Let me know what you chose and how it goes. Wishing you a seizure free life and med free life!!!!!!!!!

Riva

[Bernard]

Hi, does any anyone know about the substance used to treat myclonos? I suffer from myoclonic epilepsy.

Piracetam. It's listed on the chart I mentioned earlier.

[waralan]

Yes, I suffer from myoclonic epilepsy. My neurologist had me so loaded with depakote, it is lucky I am alive to post this.
I am interested in the substance used to treat it.
Yes, my vns has helped me cut back on the meds a lot.