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Old 06-08-2008, 08:57 AM
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Hellooo!!!


I'm new here,I was linked here from another Epilepsy forum.I have VERY uncontrolled Epilepsy,at the moment I am having anything from 1-8 complex partial's a day.I think when God was wiring my brain,He thought, stuff this,I'm going for a tea break,I'll let the trainee do it......Just thought I would say a BIG HELLO from England.
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Old 06-08-2008, 09:10 AM
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Hi Loudmouth, welcome to the forum.

Make yourself at home here.
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Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback.

Would you like to help support this forum?

We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners.
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Old 06-08-2008, 09:20 AM
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How do you get the avatars up?
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Old 06-08-2008, 09:28 AM
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There is a restriction on using animated avatars. You should be able to use a static image unless I'm remembering wrong and all avatars are similarly restricted.
__________________
Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback.

Would you like to help support this forum?

We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners.
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Old 06-08-2008, 10:25 AM
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Welcome Loudmouth -
So glad that you found us.
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Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal

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Old 06-08-2008, 10:37 AM
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Thanks.I am looking for some ideas on other things I could do to help control my Epilepsy as well as anti-epileptic drug's,wondered if there was some supplements or things that might help?And if there were any Suitabl to give to a 10 yr old as well?my daughter is not taking any anti-epileptic drug's at the moment,her Neurolofist is umming and ahhing between Lamotrigine and Ethosuxamide at the moment,she's only just been diagnosed,although they beleive she's been having absences her whole life.It took 8 years to get my diagnosis....My primary care trust where I live in England puts Epilepsy as far down the list for funding as you can get,for 3 years we didn't even have a neurologist....I'm now teravelling to a specialist unit over 40 miles away.
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Old 06-08-2008, 01:00 PM
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Wink


Welcome to CWE. I see you are finding your way around quite well already. I hope we can be some help to you or at least a place for you to relax and get some support.

We have members with E as well as members who are caregivers to someone with E. Since you are in both groups, I think you will like this sight.

Sorry about the delays in getting care. That can be VERY frustrating.

For now, have a seat and I will get you some coffee or tea.

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Old 06-08-2008, 01:21 PM
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Welcome to CWE Loudmouth -
I hope you do find some appropriate alternatives. I did... and they are working.
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Neurofeedback - Rebecca's Story
Feedback Matters- blog
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Old 06-09-2008, 11:16 AM
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Hi Loudmouth! Welcome to CWE. Actually, there are some alternative treatments....some of are taking vitamin supplements, others are doing EEG Neurofeedback, as well as other alternative treatments. Check out the library room on this site. It has a lot of good info.
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