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#1
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heyhi my name is Lisa and my fiance has been having spells for 10 weeks now, we live in northcarolina and still have no answer, he has had a eeg and mri and now we are having a sleep study monday we have no clue we have been told that he is having seziures and on the other hand he has sleep apnea and the eeg showed no seziures at all but i know he had at least 3 spells during the eeg because the did the home eeg, anyone have any ideas: his symptoms are he gets a sharp pain in the top left side of his head and he like passes out and his head jurks to the left maybe someone on here can help i have been reading the fourm and just wanted to say thanks to whom ever started this it is a trulley awsome idea again hey everyone sorry this kind of runs together im sick and dont feel to good |
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#2
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| Hi Peewee: Welcome to the board!!!!!!!!! NIce meeting you!!!!!!!!!!!!! Everyone's epilepsy is so different I can comment. Just hang in there and be patient eventually one of the tests will show something!!!!!!!! Than you'll get your answers and your treatment. Meanwhile its nice meeting you ,looking forward to getting to know you. Hope you feel better Riva
__________________ Riva's Memorial |
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#3
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| Hi Lisa, welcome to the forum. ![]() I hope you feel better soon (I'm gonna go out on a limb and guess you're under the weather because your stressed out). Hopefully the sleep study will offer some definitive answers. FYI : sleep apnea and epilepsy Epilepsy 101
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback Would you like to help support this forum? |
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#4
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| Welcome Lisa The testing is a pain inthe ass but it's the only way to get any definative answers. It's good that a wide range of tests are done because it can rule out other disorders that can mimick epilepsy and/or define the type of epilepsy your fiance has. I commend you for seeking information. So many times we find our loved ones live in denial and it makes it much harder on the person with the disorder, stresswise. Hope you feel better soon.
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#5
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| ((((((((( Hugs Lisa ))))))))))))) Sorry you're not feeling well,but I do hope the answers and solutions will come soon for your finance! I know it can be stressful having to wait for all the answers and results! I hope they get it all quickly! GET WELL SOON!
__________________ Sharon Advocate & Member of Head Storms - Resource Center "Vujà dé - the feeling you've never been in here before!" |
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#6
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| Hi Lisa, I hope you are feeling better now and things are ok for your fiance. If his tests are coming back normal, do look at getting him evaluated by a cardiologist. Syncope, heart spells that can be identical to seizures are very commonly misdiagnosed as epilepsy. This link is to an article by a heart specialist about it and how to go about getting a proper diagnosis. Zoe http://heartdisease.about.com/cs/gen...opeseizure.htm
__________________ Zoe |
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#7
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| thanks so much, the article from zoe makes alot of sense i guess things are gumbled right now we got the eeg results on thrusday which were normal and i guess it just dissapointed us that we got nothing except a referal to duke, he has the top neurologist in wilmington and he is at a stand still, |
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#8
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| I wouldn't be disappointed. I have been told that the seizure is like a warning that the body had malfunctioned somehow. Perhaps you can be proactive with dietary changes, while you are waiting for more tests. It gives you something to be in control of, and you get the benefit of good nutrition. Good luck with the referral |
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#9
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__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback Would you like to help support this forum? |