rjsulliv79
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Hey what's up!
Geez, I can't believe that I haven't discovered this site until now! I have been having complex partials for about 4 years. They are down to about one every 2-3 months, but they are still dramatic. They have evolved from total unconsciousness with eye twitching to periods of what I describe as similar to "punchdrunkedness" that last for about 5 minutes followed by amnesia and a postictal fugue that can last to up 10 minutes. I am scheduled to be admitted into an epilepsy monitoring unit for a week in a little over a month. I am afraid and excited at the same time. Furthermore, I feel like no one I speak to can truly understand what I am going through, and I understand why. I know that my friends and family care deeply for me, but if you do not endure epilepsy, it is difficult to fathom. I know that I need the support of those that are close to me, but what is the best way to talk about my epilepsy with them? It always feels like they get frustrated because they cannot help me. Is it worth it to keep trying, or should I take another route to get things off of my chest?
Also my doctor has made it clear that surgery may be an option for me. Should I consider it even though my seizures have decreased in frequency over the past year? Stuff has been pretty heavy lately....
Geez, I can't believe that I haven't discovered this site until now! I have been having complex partials for about 4 years. They are down to about one every 2-3 months, but they are still dramatic. They have evolved from total unconsciousness with eye twitching to periods of what I describe as similar to "punchdrunkedness" that last for about 5 minutes followed by amnesia and a postictal fugue that can last to up 10 minutes. I am scheduled to be admitted into an epilepsy monitoring unit for a week in a little over a month. I am afraid and excited at the same time. Furthermore, I feel like no one I speak to can truly understand what I am going through, and I understand why. I know that my friends and family care deeply for me, but if you do not endure epilepsy, it is difficult to fathom. I know that I need the support of those that are close to me, but what is the best way to talk about my epilepsy with them? It always feels like they get frustrated because they cannot help me. Is it worth it to keep trying, or should I take another route to get things off of my chest?
Also my doctor has made it clear that surgery may be an option for me. Should I consider it even though my seizures have decreased in frequency over the past year? Stuff has been pretty heavy lately....
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