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#1
09-03-2010, 12:29 PM
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Hey there! I'm anne and I have a 20yr old son with Autism/nonverbal, Mental Retardation and Eilepsy. He had first seizure in T/C 2005, he has had 2 T/C and 3 breakthrough ones, we have managed to keep under control until Monday night. Monday night T/C over 5 minutes and and trip to ER. I just guess I joined because I feel so helpless and really would love to just cry my eyes out, so I will read the forum and find people like me and hope. anne     |
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#2
09-03-2010, 12:58 PM
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Welcome Anne There are a lot of people on this site that have gone (or are going) through the stress & emotions you seem to be. We even have a "Padded Room" where you can vent your emotions if you need to http://www.coping-with-epilepsy.com/forums/f34/. There are also a lot of parents here who have autistic children. You might want to use the "search" option at the top of the page (3rd from the right) to find more relevant threads. I've found the people here to be great & extremely supportive, it's great to see others that have been through the same (or at least similar) experiences.
__________________ "It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason |
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#3
09-03-2010, 08:29 PM
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| Hi, Anne, And welcome! I"m glad you've found us. Feel free to cry your eyes out, vent, rant, or do anything you need to. This is a great place for both knowlege and support. |
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#4
09-04-2010, 03:43 AM
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| Welcome Anne, I have a special needs son too, he's 11 years now, has mental retardation caused by braindamage, he can't walk or talk, and has a nasty epilepsy syndrome. His first seizures were at age 1,5. We've tried many anti-epileptic drugs but they didn't help at all. He is on the ketogenic diet for over six years now which helpes to reduce his seizures, no meds anymore. Welcome to CWE, it's a great place were people can share anything and offer a lot of support to eachother.
__________________ Mom to an 12-year old boy with Lennox Gastaut Syndrome; on the ketogenic diet since June 2004 and AED free Being happy doesn't mean everything is perfect, it means you have decided to look beyond imperfection. |
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#5
09-04-2010, 09:03 PM
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| Hi Anne, I am fairly new to the site and it has provided a wealth of information. Everyone is so supportive and kind. You have come to the right place. I just wanted to welcome you and let you know that you are not alone. God bless you, Stacey  |
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#7
09-07-2010, 01:24 AM
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| Hi Anne Welcome. I have a daughter that has had seizures for the past four years. Have you found any of the websites that suggest alternative therapies for autism and seizure disorders?
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
