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  #1  
Old 04-09-2008, 06:09 PM
Moonwolf's Avatar
Getting Comfortable
 
Join Date: Apr 2008
Location: Yorkshire, England
Posts: 11

Hi


Hello to everyone, just registered. thought that I would a last join in with fellow sufferers.

I am *&^*$) and have had e for 10 years after a bad head injury.
Call it break dancing, always gives people a better idea of what happens and makes it less serious for myself and family. Bit like this

May peace live within your heart,
Dave.
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  #2  
Old 04-09-2008, 06:26 PM
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Super Moderator / CWE Muse
 
Join Date: Sep 2007
Location: Austin, TX
Posts: 878

Cool Welcome Dave!...


Make yourself at home. There are many here who suffer as you said...many who are into finding out just where they stand...and many trying to find out what options are available now.

In your profile you mention 15 T/C's a month...WOW!...I hope this site can help you find a way to settle that down!

PS. It is good you've found a sense of humor about it all....that is very important IMHO.

Good Luck!
Speber
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Music\auditory Stimulus and the Epileptic Brain...List of music/epilepsy related links...CWE Members can also visit Speber's Auditorium where they can vote on how different music affects them in simple polls.
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  #3  
Old 04-09-2008, 06:52 PM
Moonwolf's Avatar
Getting Comfortable
 
Join Date: Apr 2008
Location: Yorkshire, England
Posts: 11
Thanks for the greeting.

Well you've got to live with it and the best way I've found is to laugh about it, life goes on.
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Old 04-09-2008, 08:29 PM
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Join Date: Aug 2007
Location: SoCA
Posts: 2,370
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Hi Dave.
My daughter was having around 6 a month and last month we got it down to 2. I hope this month is 0. She has just finished half of her neurofeedback sessions, and I only have positive reports so far.
Hope you find some good ideas here. The lounge has plenty of things to laugh at.
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  #5  
Old 04-09-2008, 10:03 PM
brain's Avatar
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Join Date: Feb 2007
Location: Tampa Bay Region, Florida
Posts: 2,015
Dave!

Then you can rightfully say I have Epilepsy
but Epilepsy doesn't have me!



Welcome to CWE and make yourself a home,
and feel free to browse around!
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Sharon

Advocate & Member of


Head Storms - Resource Center
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Old 04-10-2008, 06:01 AM
Moonwolf's Avatar
Getting Comfortable
 
Join Date: Apr 2008
Location: Yorkshire, England
Posts: 11
My thanks for your warm welcomes.

If you let E take control of you you will cry instead of laughing. Not a way I want to live my life, so no matter how much break dancing, life goes on as close to sanity as possible.

May peace live within your heart,
Dave.
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  #7  
Old 04-10-2008, 06:50 AM
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Join Date: Mar 2005
Location: Friendswood, TX
Posts: 3,284
Hi Dave, welcome to the forum.

Have you been evaluated as a surgery candidate? Many people with traumatic brain injuries have scar tissue as focal point(s) for their seizures.

EEG neurofeedback is another option for "retraining the brain" to work around damaged tissue.
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Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback
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Old 04-10-2008, 11:19 AM
Moonwolf's Avatar
Getting Comfortable
 
Join Date: Apr 2008
Location: Yorkshire, England
Posts: 11
Hi Bernard,

I think that is a bit of a no go as 2/3 of the right temporal lobe has died. Anyway after knowing that it appears as if Dr's know virtually nothing, I will pass on it.
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