Hi Everyone

sayyadina · #1 01-05-2010, 05:49 AM

It is great to find this site. I am in New Zealand. My husband has multiple cavernous hemangiomas (they are similar to tumors). He was diagnosed when he was 16. This condition causes his epilepsy. We are going through a low point right now. I try very hard to stay positive - for my husband and our 2 children aged 10 and 2. We found out recently that the condition is genetic.

It is very nice to meet you all and I look forward to talking to you all.

Ruth · #2 01-05-2010, 08:23 AM

Hi sayyadina, welcome here.

This is a great site and I am sure you are going to like it. This forum was made by Bernard out of love for his wife Stacy.

My epilepsy is genetic. I know what you mean by "low points." I have had a lot of them in the 60 years of epilepsy. I stay positive and keep a good attitude. That gets me through them.

**BuckeyeFan** · #3 01-05-2010, 08:46 AM

Welcome to CWE.

I just welcomed another member from Canada, now the beautiful country of New Zealand. I think this site is so lucky to have members from so many different countries. I believe that provides even more insight on different problems and solutions to our problems.

I think at last count, I knew of active members from at least 8 countries. Insurance and medications are some of the big differences.

Come on in and have a seat, I'll get the coffee.

**Nakamova** · #4 01-05-2010, 09:22 AM

Welcome Sayyadina!

This is a great resource for folks dealing with epilepsy, including friends, caretakers, loved ones. It's great to stay positive for your family, but if you need to vent or yell or cry, check out the Padded Room forum and let loose. If you have any questions, or just want to chat we have forums for that too.

Best,
Nakamova

Ruth · #5 01-07-2010, 10:27 AM

Originally Posted by BuckeyeFan

:

Welcome to CWE.

I just welcomed another member from Canada, now the beautiful country of New Zealand. I think this site is so lucky to have members from so many different countries.

I think at last count, I knew of active members from at least 8 countries.

Do you know we have one from India, as well. He is working towards becoming a neurologist. That will be great having a neurologist here.

Jessdenn82 · #6 01-07-2010, 07:32 PM

welcome to CWE I have found it a great place to vent and to get great advice and talk to wonderfull people that understand what you are going through

sayyadina · #7 01-08-2010, 12:51 AM

Originally Posted by Ruth

:

Do you know we have one from India, as well. He is working towards becoming a neurologist. That will be great having a neurologist here.

Our daughter is very keen to become a Neurologist or Neurosurgeon ...

Ruth · #8 01-08-2010, 01:38 AM

That is great!! Is she in CWE? She would be a great asset.

sayyadina · #9 01-09-2010, 12:51 AM

Originally Posted by Ruth

:

That is great!! Is she in CWE? She would be a great asset.

lol, she is a little young at this stage... She is only 10 and wishes she could fix here daddy hence why she wants to become a Dr.

We have spent a lot of time at the hospital lately and I overhead a number of conversations she had with the various nurses on the wards. She liked to help them out with small tasks and they would say, "Do you want to be a nurse when you are older?" and her response was always, "No. I can't because I am going to be a neurosurgeon.."

The Following User Says Thank You to BuckeyeFan For This Useful Post:
Ruth (01-05-2010)

The Following User Says Thank You to sayyadina For This Useful Post:
Ruth (01-08-2010)