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Old 08-23-2007, 07:15 AM
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Location: Virginia
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hi I'm new and confused as usual


Hello. It has taken me several days to figure out how to navigate and post in here. I think I finally got it.

I'm Kerin. I have a traumatic brain injury. I damaged my temporal lobe, and now I have simple and complex partial seizures. They weren't diagnosed until almost a year after my injury. (Sept. 2003) I had been having them all along, just didn't recognize them.

My seizures are under control (again) with Lamictal. My dosage has had to be increased repeatedly as it works for a while, then stops working again. Although I am taking 500mg daily, my blood levels are low. Go figure.

Hello again and I look foward to getting to know you all.

Kerin
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Old 08-23-2007, 07:43 AM
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Hello Kerin and Welcome!

Sorry to hear about your injury. You will find a lot of love and support here!

Finding the right med is not fun. I, too took meds that worked for a while and then just quit working. Do you have any side effects from the Lamictal? Do the neuros have an explanation as to why your blood levels are low?

I am no longer on my meds and am now pursuing homeopathy and vitamin supplementation. There is a lot of great info. on this site about alternative approaches to managing seizures and epilepsy.

Blessed
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Old 08-23-2007, 09:21 AM
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Hi Kerin, welcome to the forums.

Isn't it odd how everyone metabolizes drugs differently? If your body is constantly adapting to the drug, you might look at some non-drug therapies to complement the Lamictal. Maybe it would give your system the nudge it needs to keep the seizure threshold high for the long term.

Originally Posted by spinnymommy :
It has taken me several days to figure out how to navigate and post in here. I think I finally got it.
I'm glad you stuck with it. You'll be navigating the forum like an expert in no time.
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Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback
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Old 08-23-2007, 09:40 AM
brain's Avatar
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Location: Tampa Bay Region, Florida
Posts: 2,302
Kerin!

Sorry to hear you sustained TBI.
But glad to hear you've found us!
You'll get the hang of this place in
no time flat!

I just wonder how often is your
blood work being checked? And are
you on other medication(s)? Sometimes
being on other medication(s), herbs,
vitamins, et cetera - can cause
interference with the medication(s)
you may be on. So always let your
Doctor know what you're taking!
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Head Storms - Resource Center
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Old 08-23-2007, 12:59 PM
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Welcome Kerin.

Glad to see you made it! I think you're gonna like it here. LOTS of super people and it's a busy place!
__________________


"If you are going through hell, keep going."
(Sir Winston Churchill, 1874-1965)

Work like you don't need money,
Love like you've never been hurt,
And dance like no one's watching.
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Old 08-23-2007, 01:12 PM
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Join Date: Jan 2006
Location: Portland Oregon
Posts: 418
Hi Kerin: Glad you stuck it out and posted. I have epilepsy 41 yrs now. The past 2 yrs I have been on homeopathy for the epilpesy and I just added the guard diet so I can off all my meds.Its amazing that diet and homeopathy work ,I am very happy with the alternative treatments. If you have any ques ,feel free to ask ??????

Riva
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