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Old 03-01-2008, 05:46 PM
Getting Comfortable
 
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Post Hi Neighbors


Just signed in/on site and am posting the ME! Have had seizures all my life (mother first noticed them when I was 3 mos...but M.D. confirmed at 5 years with gran mal.) Was then put on liquid phenobarb 1 spoon at nite. Graduated/demoted to complex-partials at 12 and have been there ever since. You name it, I've taken it at one time or another. Currently on Keppra, one 500 mg. a.m. and p.m. and one 97.2 phenobarb p.m. Have not had complex partial in 2 months...only the simple kind w/auras. Cannot have brain surgery and am apprehensive about VNS.
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Old 03-01-2008, 06:42 PM
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Welcome to the forums!
I have absence and grand mals. I am on depakote and keppra. I also have the VNS. After I had that implanted in me, I would say my seizures are about 50% less frequent, but I still have them... often. The verdict is still out on VNS, different people have different experiences. I just wish my doctor wouldve tried more then 2 different kinds of drugs before recommending the VNS. I would read up on all you can about VNS before you make that decision. Not stuff that your doctor and Cyberonics gives you though, but read about different peoples experiences with it and then decide if you want it.
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Old 03-01-2008, 08:37 PM
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3tom!

Welcome to CWE, we have
someone here who is very
knowledgeable about VNS,
and Birdbomb will be here
shortly not just to welcome
you; but also to provide you
some advisories as well - for
Birdy has a website in regards
VNS and there you will find
the Pros and Cons and all the
latest updates on VNS as well
as the latest FDA warnings,
etc. And in addition - make
yourself a home here!

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Old 03-01-2008, 08:57 PM
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Welcome 3tomaras -
I hope you find some great reading material to incorporate into your bookcase of knowledge.
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Old 03-01-2008, 11:51 PM
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Hi 3tomaras, welcome to the forum.

Make yourself at home here.
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Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback.

Would you like to help support this forum?

We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners.
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Old 03-03-2008, 12:44 AM
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Wecome 3tomaras!
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"Watch your words, for they become actions.
Watch your actions, for they become habits.
Watch your habits, for they become character.
Watch your character, for it will become your destiny."

Epilepsy 101
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