Coping With Epilepsy Neurofeedback Practitioner Directory
Sponsored Advertisement - Advertise on this site
 

Go Back   Epilepsy Forum > Our House > The Foyer



Reply
 
LinkBack Thread Tools Display Modes
  #1  
Old 03-21-2008, 11:47 PM
jeofsky's Avatar
Getting Comfortable
 
Join Date: Mar 2008
Posts: 14

Hi there everyone


I came over here from a link on the efa. I had my first seizure when I was 16. Completely random, nothing except an abnormal eeg. I went on Trileptal first but that was a joke, I had 2 breakthrough focal seizures and after I graduated high school I went into status. I was really scared at that time. But depakote er stabilized me really well. I switched to topamax 5 years later to lose weight. From there I switched to keppra...and still no problems until I tried to switch to lamictal. Then I had 2 breakthroughs...sh!t happens I guess.

Anyway I find these boards very interesting and it's fun to talke to people who understand.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #2  
Old 03-22-2008, 05:45 AM
Bernard's Avatar
Your Host
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 3,808
Hi jeofsky, welcome to the forum.

Make yourself at home here.

Why did you try to switch off the Keppra if it was working?
__________________
Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #3  
Old 03-22-2008, 09:21 AM
speber's Avatar
Super Moderator / CWE Muse
 
Join Date: Sep 2007
Location: Austin, TX
Posts: 1,128

Cool Hello jeofsky!....


You'll find some good info and good folks here!


Peace
speber
__________________
Music\auditory Stimulus and the Epileptic Brain...List of music/epilepsy related links...CWE Members can also visit Speber's Auditorium where they can vote on how different music affects them in simple polls.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #4  
Old 03-22-2008, 09:54 AM
RobinN's Avatar
Super Moderator
 
Join Date: Aug 2007
Location: SoCA
Posts: 3,462
Send a message via Yahoo to RobinN
WELCOME jeofsky -
My daughters seizures also began at the age of 14. Seems it is quite common with the onset of hormones.
Very glad that you joined us
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #5  
Old 03-22-2008, 12:38 PM
Getting Comfortable
 
Join Date: Mar 2008
Location: St. paul, minnesota
Posts: 20
I find this web site most insiteful.. I have learned so much in just the 2 days I have been here.. I gained so much weight on tegretol, and now that my seizures are under control, i want to loose the weight by trying another drug. what do you think of taking keppra?
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #6  
Old 03-22-2008, 01:21 PM
RobinN's Avatar
Super Moderator
 
Join Date: Aug 2007
Location: SoCA
Posts: 3,462
Send a message via Yahoo to RobinN
Hi minnbikergirl - all drugs react differently in each person. Sure there are some similaritites but for the most part the side effects are unique.

Since you have seizure control, have you considered just working extra hard on nutritional changes that will help you to reduce the weight. I have heard far too often that changes can bring forth a new wave of seizure activity without the promise of weight reduction.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #7  
Old 03-22-2008, 01:45 PM
jeofsky's Avatar
Getting Comfortable
 
Join Date: Mar 2008
Posts: 14
Originally Posted by Bernard View Post:

Why did you try to switch off the Keppra if it was working?
Because I'm dumb...No..I was having depression and I thought Lamictal might help, also I heard it's better to be on Lamictal if you're going to have babies...but whatever, I'd rather have seizure control and be angsty
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #8  
Old 03-22-2008, 03:29 PM
Bernard's Avatar
Your Host
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 3,808
I thought that might be the case. I don't suppose you tried vitamin B6 supplements while on the Keppra did you? It's widely reported to help mitigate the Keppra moods (side effects).

Lamictal isn't without risks either.
__________________
Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #9  
Old 03-24-2008, 12:38 PM
skillefer's Avatar
Moderator
 
Join Date: Jan 2008
Location: California
Posts: 853
Hi jeofsky! Welcome to the site!
__________________
"Watch your words, for they become actions.
Watch your actions, for they become habits.
Watch your habits, for they become character.
Watch your character, for it will become your destiny."
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #10  
Old 03-25-2008, 01:22 PM
BuckeyeFan's Avatar
Super Moderator
 
Join Date: Feb 2008
Location: Ohio - Buckeye country
Posts: 756

Dilantin help




Welcome to our little home. It is growing every day.

I am on phenytek (dilantin) and keppra. My Tonic/clonic seizures are under control since the addition of the keppra. If you would happen to go back to keppra, here is what I have found that helps with the anger and moodiness.

I try to channel it toward inanimate or non-personal items. I DON'T try to hold it in. I yell at the TV while watching sports, get mad at politicians, rant on this site once in awhile, or just go exercise hard. This seems to help keep me from blowing up at inappropriate times.

I am looking into the B6. Need to do more checking since I am also on phenytek.

Sorry, but i have not done much research on the impact for mothers to be. Lots of resources here to help you.

Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #11  
Old 03-26-2008, 10:43 AM
LynnW's Avatar
Weaving the Community Fabric
 
Join Date: Mar 2008
Location: Kentucky
Posts: 151
Hi Jeofsy! Everyone here is very nice, so I'm glad you found this place.

I was wondering about:

"I went on Trileptal first but that was a joke"

I have been having partial seizures for about 4-5 years and was only recently diagnosed and put on trileptal. What didn't you like about it? Did it not work, or did you have objectionable side effects? So far for me, no seizures. I've felt really muddle-headed and have been having issues with remembering things lately, but nothing (I guess) too bad side-effect wise.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #12  
Old 03-26-2008, 01:09 PM
jeofsky's Avatar
Getting Comfortable
 
Join Date: Mar 2008
Posts: 14
well...I am diagnosed with juvenile myoclonic epilepsy, and any carbamazepine (simple partial?) is said to actually make the seizures worse rather than control them, even after jacking the dose up. So it didn't work for me; it may work better for your type of seizures since we're all different ^_^
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
  #13  
Old 03-26-2008, 06:40 PM
Meetz1064's Avatar
Moderator
 
Join Date: Oct 2007
Location: West Lafayette, IN
Posts: 647
Send a message via MSN to Meetz1064 Send a message via Yahoo to Meetz1064

Talking hi & welcome


this is a great place to be. have fun hanging around, you'll learn alot here.....we're a pretty interesting bunch...
Add Post to del.icio.usNetscape this post!Stumble this Post!
Reply With Quote
Reply

« Hello | Hello »
Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On
Forum Jump


All times are GMT -5. The time now is 04:18 PM.


Powered by vBulletin® - Copyright ©2000 - 2008, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2008, Crawlability, Inc.
Copyright 2005 © Measuring Up. ALL rights reserved.