Howdy

[patacake]

I am new here. Thought I would chime in. I have had Left Temporal Lobectomy 7-11-05. Was seizure free for a year. It slowly came back. Getting worse and worse over time. Until around this Thanksgiving time I was found on the floor almost dead having constant tonic clonic. Takin to the ER I did not stop and did not stop. One after another for days.

I just was lucky someone came to my house and found me.

I am looking for anyone with help with headaches, any ideas? Since the surgery I have a constant headache and it is caused by light and sound.

Thanks for reading me.

Erin

[Georgiagirl88]

Hi Erin,
I just thought I'd say Hello. I am new here too. Sorry about your seizures, but glad you were o.k. I get alot of headaches also. Sometimes I can't even pinpoint the root of mine??? I do know they can go hand in hand with seizures.Wish I had more to offer. Just thought I'd say Hello! Best of luck!

Michelle

[RobinN]

Hi Erin - Welcome!

You are very lucky.
I do not have seizures, my daughter does. Migraines tend to run along the female side of my family. I was able to rid myself of them by taking magnesium. I was extremely light sensitive, and sound affected me when in the throws of a migraine.

Rebecca's doctor has asked me to increase her magnesium levels too. I am experimenting with different varieties for her at the moment, as some are more readily absorbed. I use an ionic variety.

[Birdbomb]

Welcome Erin

My neurologist prescribed Midrin for my migraines and helped tremendously!

You know the Topamax may be causing the headaches. It has some rather nasty side effects. I suffered horrendous eye pain and it can cause blindness.

[brain]

Erin!

Welcome to CWE, glad to have you
here! Sorry to hear that you are having
headaches! Hope you feel better soon!

[Bernard]

Hi Erin, welcome to the forum.

There are several threads here on the subject of headaches and migranes. I'll link to one and it contains links to the others:

Oxygen therapy for headaches

Sorry to heat that your surgery didn't offer permanent results. It seems that the original studies on the brain surgeries only followed patients for 6 months and the reoccurance of seizures becomes more pronounced after 1-2 years. (see this page on temporal lobectomies for more info).