I am new here to.

[stilldancing_98]

Hi my name is Teresa. I have had epilepsy for 32 almost 33 years . My son who is 10 has myoclonic epilepsy, and my brother in is seeing now if he has myoclonic. I have had rtl surgery and have been in an induced coma because of status. I love life much more then I did before the coma. Better outlook I guess. I am a single mom. A music lover. I spend a lot of time in the schools. My son has only 1 kidney and has high blood pressure and is slightly mentally retarded. He is in a behavior class.Life is a challenge for us daily. But we have life. And I am happy. We go to Harborview in Seattle WA for our care. And we both see the same epileptologist. I teach the school that he goes to about epilepsy and behavior. And that is about it. I hope I DID NOT not bore you to much. Oh!My brother just moved from London. I here the neurology and oncology is wonderful there once you can get through the red tape.I helped a girl get in the oncology there for some cancer treatment. I had some of that too. So have you gotten the treatment you need yet?

[RobinN]

Hi Teresa - I moved your post to its own thread so people can make comments to you.

Welcome to CWE. It sounds like you have something that is genetic. Is that right?
I wish you could come teach my daughters school about E. There are a few others here that would like it as well. The educational system isn't very current on the subject.

I hope you find your way around here ok. Feel free to ask questions if you can't.

[Stacy]

Hello Teresa,

My mother was single with epilepsy also. Her grandmother had it as did her brother. i wasn't diagnosed until I was 12. Now things seem to get worse before getting better. Don't worry, it WILL get better.

[stilldancing_98]

Thank-you Stacy for the positive outlook. My brother has not been diagnosed yet. But I am helping him get some good testing done via my Dr. He lives in New York. I have 2 types of epilepsy. I think my son's Dad has myoclonic, my myoclonic did not come until after a surgery and I aquired some b-cells in my brain and went into status. 2types of epilepsy focal and generalized and a lot of types of seizures. But atleast not the worst ones. Anyway, I am happy. I have a good family. They help me and my son. I was diagnosed at 10 after the chicken pox. Tell me more about yourself. Oh, I love dating now tee hee.

[Bernard]

Hi Teresa, welcome to the forum.

Have you heard about Piracetam? It's used in Europe for myoclonus.

[Birdbomb]

Welcome Teresa

Nice to meet you. Hope you like Bernard's site. He's done such a wonderful job!

[Meetz1064]

I just wanted to drop in & say HI.

We seem to have a love of schools in common. I substitute teach just about every day.

You have a wonderful outlook on life. Very positive, which is great. And a single mom, too. Wow. Stick around. You'll have fun here.

Take care,

Meetz

[stilldancing_98]

This is so cool! Thank you for introducing yourselves. I love the positive attitudes. It sounds like fun around here. And Bernard how dare you know of a medication I don't know of . lol just kidding . My epileptologist is a med specialist. We are doing one switch from Topamax to Zonegran. We are not done yet. And I am on Keppra, Lorazepam and Diamox for the fluid on my Brain. I see my epileptologist every 2 mo so I will get some info thank-you.

[Bernard]

... And Bernard how dare you know of a medication I don't know of. ...

"Well, you have to know these things when you are King, you know."

[skillefer]

Hi Teresa! Welcome to the forum!

[brain]

Teresa!

Welcome to CWE!
Glad to have you here!

[tinasmom]

Welcome Teresa -

I am on a mission here to help educate people about Epilepsy. I fought with my granddaughters school for seizure training and they finally agreed. I set up training at our church and my newest challenge is that I am going to the school board to plead my case for the entire district to be trained.

[stilldancing_98]

Yea! Don't forget to tell them about the emotions, the dizzyness of meds. Oh that is so great. I am proud of you. And you should be proud of yourself. You look at yourself in the mirror today and say "good job!" to your self. I even do it with my son.Keep me posted on this ok? Teresa

[stilldancing_98]

And for you Mr King Bernard. Im saying a prayer for your wife. LOL Just kidding. I bet you keep her going with that sense of humor. Teresa