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#1
02-19-2009, 05:25 PM
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I'm BAAAAAACK!!!!! I haven't posted in forever but that is because I have finally decided that I control my seizures, they don't have control of me. Actually, I have been using biofeedback and behavior modification as well as 800 mgs of tegretol to control them...... Peaceful Hugs Rose     |
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#2
02-19-2009, 05:29 PM
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Welcome back Rose Congratulations on getting your seizures under control  . I'd love to hear more about the details of behaviour modification. I've been accepted into a treatment group for epileptics to get Cognitive Behavioural Therapy. Is that what you're referring to?
__________________ "It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason |
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#3
02-19-2009, 05:43 PM
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| I got involved with a research study at Oregon Health and Sciences University in Portland Oregon using the Andrews-Reiter method that using deep breathing and meditation to control seizures. It also includes assertiveness training. Its hard to explain but since I have been in the study( at the beginning I was having at least 5 seizures a day 7 days a week) I am down to maybe one every 18-20 months if that and that is only under extreme stress. Rose |
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#4
02-19-2009, 05:54 PM
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| Originally Posted by Rose  :
http://www.andrewsreiter.com/work.html
__________________ "It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason |
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#5
02-19-2009, 06:04 PM
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| Welcome back Rose! I am so glad to hear that you have responded so well to your treatments. That is absolutely wonderful! I am currently dealing with daily seizures, and I have just started neurofeedback. I would love to see some positive results.  Good to have you here with us again!  Take care. -Julie
__________________ "I WILL NEVER GIVE UP ON MY DREAMS; I WILL JUST MODIFY MY PATH FOR REACHING THEM" -j (me)  "Life is better left to chance. I could have missed the pain, but I'd have had to miss the dance." -Garth Brooks |
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#6
02-19-2009, 07:57 PM
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| Awesome news Rose. I am so thrilled to hear this. I hope you can share your story with others here. We have been considering using the book as a guide and open a group here for others who want to work on this from home.
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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#7
02-19-2009, 08:42 PM
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| The cool thing is that for part of the study, I worked directly with Donna Andrews and keep in touch with her via e-mail on a regular basis( as regular as can be, considering she is a very busy lady and I have to limit my computer time because of it being a trigger for me) Rose |
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#8
02-19-2009, 09:16 PM
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| "Cool things" put a smile on my face.
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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#9
02-20-2009, 06:09 AM
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| Nice to see you again Rose and fantastic news on the seizure control. Perhaps you could elaborate a bit more on your experience with Dr. Andrews' therapy in the History Book forum (see the sticky thread before posting)?
__________________ New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads. Would you like to help support this forum? |
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#10
02-20-2009, 11:10 AM
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| Hi Rose  Welcome back!!! Congrats on taking control of your life again  That's amazing!!!
__________________ Read About Our Story At: Overcoming Epilepsy First say to yourself what you would be; and then do what you have to do. ~Epictetus  |
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#12
02-21-2009, 11:51 PM
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