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#1
04-29-2009, 05:16 PM
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Isabella's Insight My daughter Isabella Gabriella has a very complex siezure disorder. It has been 3 years in play. Up and downs, success and failure. I only wish that I had stumbled accross this site earlier in our experiences. So, I am going to offer our personal experiences un edited and "un-sensored". I have no intention of swearing....LOL But, I know my families experiences will help others as they discover the challanges and amazing things that epilepsey brings out in people. So, Before I dive into the scoop... I am 38 my wife is 33. We have a total of 4 kids. Isabella is 6 (this month) Emily (eldest  Sarah (4), Rylan (2).Isabella has at best guess Abnomral Complex Absance Siezure disorder showing in 4 distinct siezure forms. Where should I start the post?     |
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#2
04-29-2009, 05:52 PM
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| Hi NAS - Welcome to CWE. I am glad that you have found us, and are willing to share your stories. I hope you learn from some of ours as well. I would suggest that you begin your story in the Kitchen. Unless you want to keep it in the Nursery. That is up to you. Others can continue to welcome you here.
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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#3
04-29-2009, 10:29 PM
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Welcome to CWE I look forward to hearing your story.
__________________ "It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason |
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#4
04-30-2009, 06:49 AM
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| Hi NAS, welcome to the forum.  You are welcome to post your story right here in the Foyer (in this thread). This is where we introduce ourselves to the community. You can also start a new thread in the Nursery or Kitchen if you prefer.
__________________ New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads. Would you like to help support this forum? |
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#5
04-30-2009, 07:09 AM
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| Welcome NAS, My son (9) has a complex seizure disorder called the Lennox Gastaut syndrome. He is med resistant but his seizures are 90% controlled thanks to the ketogenic diet. You're welcome to join other parents in the Nursery.
__________________ Mom to an 12-year old boy with Lennox Gastaut Syndrome; on the ketogenic diet since June 2004 and AED free Being happy doesn't mean everything is perfect, it means you have decided to look beyond imperfection. |
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#6
04-30-2009, 09:17 AM
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| After Carefull thought (that's what i do!) Im going to post two, one in the kitchen and one in the nursery. Im thinking to share how epilepsey has effected our family in the kitchen, and the early medical stuff in the nursery. I am Canadian and a resident of BC. So, you may find that some of the medical stuff is not to similar to your experience. I know if I had read some of these posts before when my daughter was just starting with her epilepsey it would help and scare the heck out of me. For what it's worth, I gotta warn ya... |
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#7
04-30-2009, 01:42 PM
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| Originally Posted by NAS  :
__________________ "It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason |
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| Tags |
| child, parent, peer, siezure, suport |
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