Just getting started

[wynndsong]

Hello, I'm gust getting started here. Having one of those bad days we all fight to cope with. I set up a referral to an epileptologist today because my seizures have progressed to near-fatal. I had to be intubated for breathing problems (apparently I stopped doing so & it's required to do so) during a seizure about a week ago. I wasn't home for even two days when my daughter had a probable petit mal, falling down the stairs. I'm hoping to find friends, know if anyone has a vagal nerve implant, and find options to discuss with my doctor. My epilepsy is a real turkey. Multi focal, multi trigger, and rather stubborn about responding to meds (on Trilipeptal and Lamictal, Keppra gorks me out)

[Nakamova]

Hi wynndsong, welcome!

You've come to the right place, lost of folks here at CWE who can relate to all the "fun stuff" that comes with e.

And there are a number of folks with the VNS. Birdbomb here is the resident VNS Guru and runs a VNS board:
http://www.vnsmessageboard.com/

I hope that you are recovering for your horrific recent seizure, and that your epileptologist is able to help.

Best,
Nakamova