Hello everyone,
I am new to the forum and I am looking for some ideas in regards to treatment for Left Temporal Lobe Seizures.
I am a 26 year old female who suffers from (as one of the neurologists I see said) "sharp spike waves in the left temporal lobe." I also suffer from dysautonomia (dysregulation of the autonomic nervous system). For the dysautonomia I see a neurologist in Boston. Recently, I began having symptoms that are unrelated to my blood pressure problems. I experience a severe lightheadedness feeling, severe nausea, and it almost feels like my legs are going to give out. Most often I wake up during the night with severe nausea and lightheadedness (feels like I am going up/down a really fast elevator). I did have a 48 hour EEG which showed sharp spikes in the left temporal lobe. One neurologist told me I was fine and it was probably my blood pressure dropping (even though the EEG said otherwise!). However, the director or neurology at a Boston hospital told me that it was most likely a seizure occuring...
The real problem comes with treating this seizure. My mother is an epileptic (she was prematurely born and that is why she has epilepsy) who had a severe drug reaction to an anticonvulsant (most likely Depakote). My primary care doctor is against me taking any anticonvulsant since there is a high chance that I'll get SJS/TEN from the anticonvusant. So, this leaves me pretty much stuck. I guess I am looking for some other treatment options that others have found work. Aside from waking up during the night from these events/seizures, I do suffer some memory loss when they occur during the day. I rarely drive anymore, and don't want to until I know that I will not have these events anymore.
I greatly appreciate your input!! Thank you!
I am new to the forum and I am looking for some ideas in regards to treatment for Left Temporal Lobe Seizures.
I am a 26 year old female who suffers from (as one of the neurologists I see said) "sharp spike waves in the left temporal lobe." I also suffer from dysautonomia (dysregulation of the autonomic nervous system). For the dysautonomia I see a neurologist in Boston. Recently, I began having symptoms that are unrelated to my blood pressure problems. I experience a severe lightheadedness feeling, severe nausea, and it almost feels like my legs are going to give out. Most often I wake up during the night with severe nausea and lightheadedness (feels like I am going up/down a really fast elevator). I did have a 48 hour EEG which showed sharp spikes in the left temporal lobe. One neurologist told me I was fine and it was probably my blood pressure dropping (even though the EEG said otherwise!). However, the director or neurology at a Boston hospital told me that it was most likely a seizure occuring...
The real problem comes with treating this seizure. My mother is an epileptic (she was prematurely born and that is why she has epilepsy) who had a severe drug reaction to an anticonvulsant (most likely Depakote). My primary care doctor is against me taking any anticonvulsant since there is a high chance that I'll get SJS/TEN from the anticonvusant. So, this leaves me pretty much stuck. I guess I am looking for some other treatment options that others have found work. Aside from waking up during the night from these events/seizures, I do suffer some memory loss when they occur during the day. I rarely drive anymore, and don't want to until I know that I will not have these events anymore.
I greatly appreciate your input!! Thank you!