life changes

[Janet Lee]

I am new to this site and to Epilepsy. I had a seizure four years ago and was taken to the hospital where tests revealed I had a brain aneurism. I had brain surgery and am doing pretty well. The only problem I have is a headache almost every day. I didn't have any more seizures until July of this year when I passed out at a resturant. An ambulance was called and they took me to the hospital where I was dignosed with Epilepsy. Since then I have had numerous seizures even though I am on two types of medicin. They occur without warning. I'm having trouble with loosing my freedom such as drivng and having someone with me at all times. How do I accept my status in life?

[Nakamova]

Hi Janet Lee, welcome to CWE!

Having epilepsy forces you to focus on quality of life issues -- things affected by the seizures, by the meds, and by the restrictions those things place on you. It can take time to find a way to figure out what's most important, and what's worth putting your energy and interest into.

The ideal scenario is that you will find a treatment that will help control your seizures. Have you and your neurologist discussed adjusting your dosages, or trying other medications? How do the medications make you feel? If there are any side effects, are they tolerable? A complementary approach involves being proactive about any factors that may be lowering your seizure threshold. More info here: Proactive Prescription for Epilepsy Another option to consider is neurofeedback. It has it's plusses (no side effects, lasting benefits) and minuses (usually not covered by insurance; many sessions required). More info on that here: EEG Neurofeedback

If some things have been taken away from you (like driving and independence), try to find new things that you CAN take control of. It doesn't have to be anything huge -- it can be as simple as planning different short walks every day, or learning how to knit, or taking a course on-line. We all bring different strengths to deal with the frustrations and stresses, and the challenge is to muster yours so that you are controlling your situation and not letting it control you.

If you find yourself struggling, consider seeing a therapist. Epilepsy is a lot to process, and a counselor can help keep you from getting bogged down in the bad stuff.

Best,
Nakamova