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Old 11-17-2009, 06:14 PM
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Angry looking for help


i have a 22 year old daughter with generalized epilepsy
she takes both zonegran and keppra and has been under control for 5 years now---my problem is this---when she turns 23 and is off my insurance, where can i turn for medication coverage? i am truly worried about this-
applied for SSI and turned down as well as medicaid- we live in ohio and the rules state she must have no control with her seizures to qualify--what is a person to do? w/out the medications of course she will return to having them--is this what the idiots want to happen? any advide greatly appreciated=Renee

Last edited by epileric; 11-17-2009 at 06:19 PM.
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Old 11-17-2009, 06:24 PM
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Welcome Renee


Should I assume you live in the US? If so this might help

When You Can't Afford Medication
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Last edited by epileric; 11-17-2009 at 06:27 PM.
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Old 11-17-2009, 07:23 PM
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I hate to say it, and Im usually a very upfront honest person but when it comes to my kids...I can get nutz : )

Id tell them whatever they want to hear that would keep my kid on meds. The other option is to get in touch with the maker of your meds and see if they will help.

I am so sorry. Health care in the USA leaves alot to be desired.

I wish you well.
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Old 11-17-2009, 07:45 PM
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Is there a state social services advocate that you could contact? Or your state rep? This seems like a ridiculous policy. Can get you obtain financial assistance in getting health insurance fro your daughter from a group like OhioHealth?
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Old 11-18-2009, 07:44 PM
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It is my understanding that if you do not let the insurance lapse, she will have to be covered for pre-existing conditions, by law. Even if you have to help her get cobra insurance I would suggest you do it.
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Old 11-28-2009, 11:25 AM
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If she's


working, can she afford to buy a health insurance plan through there? If not, try to have her buy a plan on her own from a company of your choice....although that may not prove to be easy, either.....
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Old 12-02-2009, 08:00 AM
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Hi Renee, welcome to the forum.

Eric already provided you with a link to many helpful resources, but I wanted to say hello.
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Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback.

Would you like to help support this forum?

We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners.
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