Hi all
Its my first time on here - my lovely, 32 year old boyfriend has actually already signed up and posted on here by means of finding support for himself, so that he can better support me (its me who has epilepsy, not him thank goodness).
Having a really low day and a low week following a 3 day hospital stay from 26th March.
Epilepsy (temporal lobe) had gone quiet for quite a while (a good few months since full blown seizure/seizures) with the exception of some auras and 'deja vu', which I felt I could handle.
Had 3 days off work after a middle of the night seizure (which naturally frightened my partner), a 2nd seizure around 8 hours later and the 3rd, 4th and 5th seizures in hospital.
I've had near-on total memory loss for the 1st-5th period and some, partial but substantial memory loss even from the weeks before and thus, real 'jamais vu'. I've been relying on those I love to tell me things from recent memory.
My medication was recently altered in so far as Lamotrigine I have been on since the very start was increased with Keppra from more recent years been halved and switching from the contraceptive Pill to the Coil (under direction from my neurologist, reasoning being to make my medication more effective - kind of back-fired on us unfortunately!!)
Feeling really low. Its the disappointment that its all happened again, guilt for putting those I love (esp my partner of 6 years whom I only 4 weeks ago moved in with) through this seemingly endlessly and going over things, anxiety it could happen again to any extent and at any point and severe lethargy and sheer exhaustion. My medication daily dosage has doubled (why will account for this as well as my body recovering) and feeling about like a medicine box!
Luckily, I work in a school so we have been on school break all of last week and all of this coming week.
I'm dreading going back as I know Ill be tired, questioned by albeit concerned colleagues and feel that I will have to re-learn my job due to my memory loss. I guess I'm now under-confident as to whether I'm up to the job. I like my job, its not particularly stressful (I work with an autistic boy and a girl with behaviourial problems) and I find it important and worthwhile.
Any advice or guidance or words of advice or positive stories from out there?
I know there are a huge amount of us in the same or similar boat and that's why we are here.
Its my first time on here - my lovely, 32 year old boyfriend has actually already signed up and posted on here by means of finding support for himself, so that he can better support me (its me who has epilepsy, not him thank goodness).
Having a really low day and a low week following a 3 day hospital stay from 26th March.
Epilepsy (temporal lobe) had gone quiet for quite a while (a good few months since full blown seizure/seizures) with the exception of some auras and 'deja vu', which I felt I could handle.
Had 3 days off work after a middle of the night seizure (which naturally frightened my partner), a 2nd seizure around 8 hours later and the 3rd, 4th and 5th seizures in hospital.
I've had near-on total memory loss for the 1st-5th period and some, partial but substantial memory loss even from the weeks before and thus, real 'jamais vu'. I've been relying on those I love to tell me things from recent memory.
My medication was recently altered in so far as Lamotrigine I have been on since the very start was increased with Keppra from more recent years been halved and switching from the contraceptive Pill to the Coil (under direction from my neurologist, reasoning being to make my medication more effective - kind of back-fired on us unfortunately!!)
Feeling really low. Its the disappointment that its all happened again, guilt for putting those I love (esp my partner of 6 years whom I only 4 weeks ago moved in with) through this seemingly endlessly and going over things, anxiety it could happen again to any extent and at any point and severe lethargy and sheer exhaustion. My medication daily dosage has doubled (why will account for this as well as my body recovering) and feeling about like a medicine box!
Luckily, I work in a school so we have been on school break all of last week and all of this coming week.
I'm dreading going back as I know Ill be tired, questioned by albeit concerned colleagues and feel that I will have to re-learn my job due to my memory loss. I guess I'm now under-confident as to whether I'm up to the job. I like my job, its not particularly stressful (I work with an autistic boy and a girl with behaviourial problems) and I find it important and worthwhile.
Any advice or guidance or words of advice or positive stories from out there?
I know there are a huge amount of us in the same or similar boat and that's why we are here.
