nature girl
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Hi! I am obviously new here....here's the abbreviated story of my epilepsy:
I was diagnosed over 10 years ago (in my mid 30s ) in a sleep study where they realized I had about 15 partial complex seizures. Progressively, I started having complex partial seizures during the day and some grand mal. I was diagnosed with temporal lobe epilepsy. It took a year or two to get the right 'cocktail' of drugs to help me be ‘seizure-free’ (which I think most us could not consider ourselves seizure-free in reality). Over the next couple of years I would very occasionally have a partial complex and rarely a grand mal. I almost always have an aura warning (‘black fireflies’ twinkling in from my peripheral vision) which can give me anywhere from 30 seconds to 3 hours warning. Over the years, I have figured out what can trigger my seizures (lack of sleep, not exercising on a regular basis, stress, my period, live music, low blood sugar) and I manage to deal with these things well … usually. I exercise religiously, meditate, and do yoga which all helps me manage. However, I am tired of being on the medication merry-go-round and am interested in learning more about neurofeedback and EEG stimulation, as well as other holistic approaches.
“There is nothing the body suffers the soul may not profit by.”
George Meredith, Novelist
I was diagnosed over 10 years ago (in my mid 30s ) in a sleep study where they realized I had about 15 partial complex seizures. Progressively, I started having complex partial seizures during the day and some grand mal. I was diagnosed with temporal lobe epilepsy. It took a year or two to get the right 'cocktail' of drugs to help me be ‘seizure-free’ (which I think most us could not consider ourselves seizure-free in reality). Over the next couple of years I would very occasionally have a partial complex and rarely a grand mal. I almost always have an aura warning (‘black fireflies’ twinkling in from my peripheral vision) which can give me anywhere from 30 seconds to 3 hours warning. Over the years, I have figured out what can trigger my seizures (lack of sleep, not exercising on a regular basis, stress, my period, live music, low blood sugar) and I manage to deal with these things well … usually. I exercise religiously, meditate, and do yoga which all helps me manage. However, I am tired of being on the medication merry-go-round and am interested in learning more about neurofeedback and EEG stimulation, as well as other holistic approaches.
“There is nothing the body suffers the soul may not profit by.”
George Meredith, Novelist
