New epileptic seizure since surgery

[haird18]

In 2000 I had right temporal lobedectomy. And now I have complex partial seizures! I also have mutiple other brain deformities, spasticity cerebral palsy. I am 34 and still have complications!

[CJR]

It must be so frustrating for you to continue to have seizures after having undergone such a major surgery to control them. What type of seizures did you have prior to the surgery? Are the doctors offering you any help? Although, helpful doctors are kind of hard to come by.

I know Robin has quite a bit of info on Neurofeedback. Have you tried that? If not it may be something that could be helpful to your situation.

[Bernard]

Hi haird18, welcome to the forum.

Unfortunately, it appears that initial studies on the efficacy of brain surgeries only monitored patients through 6 months. More recent longer term studies are showing that the chances of seizure activity returning increase as time goes by:

The aim of this study was an in-depth examination of patterns of longitudinal outcome and potential risk factors for seizure recurrence after lobectomy, utilizing a large patient sample with long follow-up. Included were 325 patients who underwent anterior temporal lobectomy between 1978 and 1998 (mean follow-up 9.6 ± 4.2 years). Retrospective data were analysed using survival analysis and multivariate regression with Cox proportional hazard models. The probability of complete seizure freedom at 2 years post-surgery was 55.3% [95% confidence interval (CI) 50–61]; at 5 years, 47.7% (95% CI 42–53); and at 10 postoperative years it was 41% (95% CI 36–48 ).

Temporal lobectomy: long-term seizure outcome, late recurrence and risks for seizure recurrence

EEG neurofeedback (or OchsLabs LENS system) are options for retraining the brain. Based upon my wife's experience and all the research I've done on them, I highly recommend it if you can afford it.