New to the forum

[Belle]

Hi all, my name is Belle and my son has epilepsy. He was diagnosed nearly 6 years ago with absence seizures which are getting worse as each year passes.

[epileric]

The people here are very supportive & There's a lot of parents here with kids like yours.

I"m a bit like your kid (though I"m assuming much older) in that my seizures seem to be getting worse every year too.

[BuckeyeFan]

Welome to our family here at CWE. Like Eric said, this is a great place for parents, not just those of us who have E. You need support and answers just as much we do.

[Meetz1064]

how do you do, Belle? It's very nice to meet you.

I'm sorry to hear that your son's seizures are getting worse--have you tried keeping a seizure diary for him to see what his triggers may be? Perhaps doing that will help you.

Even things like food--yes, food--can be triggers for the seizures. There's plenty of people here that can testify to that. Lights, sounds (there are some people triggered by a specific song or sound) and hormones are all culprits.

I have a great list of things that you can put into a seizure diary to help you eliminate things--and then showing it to your doctor may help determine how to best deal with things.

Feel free to poke around in all the nooks and crannies here. We have plenty of them. Mr B has built us an AWESOME home here--the dinner party is fun, and plenty of friends to make and have. Lots of information can be found in the Library and the Kitchen, so kick back and relax, I'm sure you're going to like it here.

Now, I burned the coffee again, otherwise I'd offer you some. Maybe Buckeye made some..........

Take care!

Meetz

[Nakamova]

Hi Belle, welcome!

There's lots of support here at CWE, as well as empathy and advice. You might want to ask your son's neurologist about a med change to help control his seizures, and/or look into alternatives like neurofeedback.

Best,
Nakamova

[Endless]

Hi, Belle,

Welcome!