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#1
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New to ForumHello, my name is Duke, just found the site earlier today. I have had seizures since the age of 2, I'm 40 now and have been diagnosed with complex partial seizures. Am taking 3 diferent medications, have a VNS that is turned off and have just enrolled in a clinical trial for a RNS implant at Wake Forest Baptist Medical College. I had a lobectomy at Duke University in Aug '05,before that seizures about 1 every 4 to 5 days, after 7 to 9. Big improvment , but if I'm still having seizures that means I still have to find a way to make them stop. All for now. Duke |
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#2
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DukeSorry to hear you're still having seizures, but sometimes a reduction of them is better than going through dozens of them a day! Sounds to me you're in very good hands! Glad you're here!
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#3
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| Hi Duke, It sounds like you are working on your problem, and hopefully will have a solution soon. I hate taking ANY medication, much less three. There is a book you might find helpful.... Epilepsy: a new approach. What medicine can do; what you can do for yourself, by Adrienne Richard and Joel Reiter, M.D. I wish you the best. You are welcome here anytime. The people at this forum are very nice and you might even find an answer from someone with the same experience.
__________________ Love, Stace |
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#4
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| Hi Duke: Nice meeting you , glad to hear your szs are cut in half, hopefully with patience and time they will be gone completly. I am using homeopathy and the Gard diet to control my szs. I have ran out of meds after having epilepsy since I am 11 yrs old and I am now going on 52 yrs old. MY body is tired of the meds . Riva |
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#5
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| Hi Duke, welcome to the forums. ![]() Oh man, I remember when Stacy was having tonic clonic seizures once a week. She was basically a walking vegetable. It was terrible. I hope your complex partial seizures aren't hitting you as hard as her tonic clonic seizures hit her. Gratuitous image: ![]()
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback |
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#6
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#7
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| Keep us posted on how everything is going.
__________________ Love, Stace |