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#1
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New Girl In Town!!!I'm 23 year old Epiphany from MI. Just joined today. I have had epilepsy a little over a year now. Its been quite the journey but I am dealing with it. I have just had some really bad experiences with this stuff so I figured this would be a good way to communicate with others dealing with the same thing. ....Hope to talk to you soon!!!! |
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#2
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| Hi Epiphany, welcome to the forum. ![]() Make yourself at home here.
__________________ New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads. Would you like to help support this forum? |
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#3
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Welcome!! I've only been here a few days and everyone is so nice and full of great info!! |
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#4
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| Hey there New Girl! Welcome. Seems you and my daughter Rebecca were told about the same time. I wish she would get on board here, but she doesn't want to be reminded, so I do it for myself. She also has had a rough go with it, as I have, and it is good to have a protected place to chat with others going through it. Her last seizure was last Monday. We have made it 9 days so far. How are you doing on the meds? |
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#5
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#6
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| Hi Epiphany, Welcome. I also like your name. One word says a lot. Kerin |
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#7
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| Just was wanting to say welcome to the boards too!!!! |
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#8
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Epiphany!Glad you've zoomed by CWE! ![]() Kick back and make yourself a home here! |
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#9
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meds
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#10
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| Welcome epiphanyd I think you'll find quite a few here in the same predicament, newly diagnosed and learning to cope. Many others here have traveled that route. There are over 5 MILLION people in the US with some type of seizure disorder! So we are never really alone. Most choose to keep quite about it. CWE sells T-shirts, mugs and such with the logo... ![]() I was wearing my T-shirt at Lowe's last week.( great big home improvement store) I had forgotten I even had it on. People keep giving me these strange looks, but it was the cashier who asked, "Do you have epilepsy?" I was shocked at first, but then remembered the SHIRT! She said her sister had just been diagnosed and thus a conversation ensuded about Coping with Epilepsy. Public awareness begins one person at a time and it starts with ourselves. Learn all you can! Become fluent in the E language. Kick off your shoes, and enjoy the house party!
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#11
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__________________ New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads. Would you like to help support this forum? |
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#12
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| epiphanyd, Welcome to our home away from home. I understand your frustration, and the amount of control it must take to remain patient. We are here to support one another. I am the mom of a 19 yr. old son who has nocturnal seizures since the age of 12 1/2. Marian |
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