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  #1  
Old 11-07-2007, 07:39 PM
New Here
 
Join Date: Nov 2007
Posts: 2

New Girl In Town!!!


Hi,
I'm 23 year old Epiphany from MI. Just joined today. I have had epilepsy a little over a year now. Its been quite the journey but I am dealing with it. I have just had some really bad experiences with this stuff so I figured this would be a good way to communicate with others dealing with the same thing. ....Hope to talk to you soon!!!!
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  #2  
Old 11-07-2007, 08:44 PM
Bernard's Avatar
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Join Date: Mar 2005
Location: Friendswood, TX
Posts: 3,775
Hi Epiphany, welcome to the forum.

Make yourself at home here.
__________________
Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback
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  #3  
Old 11-07-2007, 08:47 PM
mommyof3's Avatar
Getting Comfortable
 
Join Date: Oct 2007
Location: Kentucky
Posts: 16
Welcome!! I've only been here a few days and everyone is so nice and full of great info!!
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Old 11-07-2007, 09:12 PM
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Join Date: Aug 2007
Location: SoCA
Posts: 3,390
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Hey there New Girl! Welcome. Seems you and my daughter Rebecca were told about the same time. I wish she would get on board here, but she doesn't want to be reminded, so I do it for myself. She also has had a rough go with it, as I have, and it is good to have a protected place to chat with others going through it.
Her last seizure was last Monday. We have made it 9 days so far.
How are you doing on the meds?
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  #5  
Old 11-07-2007, 09:24 PM
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Super Moderator / CWE Muse
 
Join Date: Sep 2007
Location: Austin, TX
Posts: 1,124

Cool Welcome Epiphany!......


Glad you made it!....awesome name!
__________________
Music\auditory Stimulus and the Epileptic Brain...List of music/epilepsy related links...CWE Members can also visit Speber's Auditorium where they can vote on how different music affects them in simple polls.
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  #6  
Old 11-08-2007, 09:13 AM
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Weaving the Community Fabric
 
Join Date: Aug 2007
Location: Virginia
Posts: 114
Hi Epiphany,

Welcome. I also like your name. One word says a lot.

Kerin
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  #7  
Old 11-08-2007, 10:21 AM
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Join Date: Sep 2007
Posts: 44
Just was wanting to say welcome to the boards too!!!!
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  #8  
Old 11-08-2007, 11:51 AM
brain's Avatar
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Join Date: Feb 2007
Location: Tampa Bay Region, Florida
Posts: 2,302
Epiphany!

Glad you've zoomed by CWE!


Kick back and make yourself a
home here!
__________________

Sharon

Advocate & Member of


Head Storms - Resource Center
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  #9  
Old 11-08-2007, 12:29 PM
New Here
 
Join Date: Nov 2007
Posts: 2

meds


Originally Posted by RobinN View Post:
Hey there New Girl! Welcome. Seems you and my daughter Rebecca were told about the same time. I wish she would get on board here, but she doesn't want to be reminded, so I do it for myself. She also has had a rough go with it, as I have, and it is good to have a protected place to chat with others going through it.
Her last seizure was last Monday. We have made it 9 days so far.
How are you doing on the meds?
I had started having seizures again after I finally found a job that would take me back in September. Two weeks after I started I had one at work. I went to my doc about a 1 1/2 week ago and he has been steadily upping my lamictal and zonisamide. Worked until this morning. I had a siezure on the bus...luckily my bro was on it with me. This is becoming real annoying. But I have to be patient, The siezures used to be more often and far more dangerous. Now people tell me its like I just freeze up for a minute 2 minutes top. I just don't like sympathy, or not driving.
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  #10  
Old 11-08-2007, 04:33 PM
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Super Moderator / VNS Guru
 
Join Date: Apr 2005
Location: Las Vegas, Baby!
Posts: 1,865
Welcome epiphanyd

I think you'll find quite a few here in the same predicament, newly diagnosed and learning to cope.

Many others here have traveled that route. There are over 5 MILLION people in the US with some type of seizure disorder! So we are never really alone. Most choose to keep quite about it.

CWE sells T-shirts, mugs and such with the logo...



I was wearing my T-shirt at Lowe's last week.( great big home improvement store) I had forgotten I even had it on. People keep giving me these strange looks, but it was the cashier who asked, "Do you have epilepsy?" I was shocked at first, but then remembered the SHIRT! She said her sister had just been diagnosed and thus a conversation ensuded about Coping with Epilepsy.

Public awareness begins one person at a time and it starts with ourselves. Learn all you can! Become fluent in the E language.

Kick off your shoes, and enjoy the house party!
__________________


"If you are going through hell, keep going."
(Sir Winston Churchill, 1874-1965)

Work like you don't need money,
Love like you've never been hurt,
And dance like no one's watching.
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  #11  
Old 11-09-2007, 07:28 AM
Bernard's Avatar
Your Host
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 3,775
__________________
Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback
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  #12  
Old 11-10-2007, 06:42 PM
Moderator
 
Join Date: Aug 2007
Posts: 99
epiphanyd,
Welcome to our home away from home. I understand your frustration, and the amount of control it must take to remain patient. We are here to support one another. I am the mom of a 19 yr. old son who has nocturnal seizures since the age of 12 1/2.
Marian
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