new here

[resslers]

i am new to this site as of today 12/15/08. i am doing this and please get back if i got back to you.

i started out on med and and now up to 5 at once and they still don't have them uinder control. when i was at the dr the last time i got so mad asking him why we couldn't get them under control. he just started the last med felbamate, keppra, lyrica, neurontin, dilantin. they have been given to me in the order i just gave you with felbamate being the last one.

i was thinking maybe we finally had the right mix because after going to this mix i didn't have any problems for a couple weeks but they are back. i think they are the best they have been for years but it sucks that they still can't make something work. i don't want to tell you this telling you that they can't make something work for you because some people can get them under control with just 1 med. they have these ranges of how much of a med you should need and i am always at the high side of all my meds. in they looking around that i have been finding just lately i have heard of some meds that i have never heard of before. when i asked my dr abou this he said that since i am already on 5 and they still aren't working the chances of me finding 1 that will work is very small. but believe me i am not going to stop looking around and talking to people like wourself.

so if you want to talk more about things that are on your mind please feel free to get back. like i said for being the first person that i have gotten back to i would really like it that you just get back that you did get this so i see that it works, lets keep fighting this stuff together, thanks-jim.

[RobinN]

resslers... it is working on this end.

Welcome.. I am glad that you joined us.
My daughter is still trying to find a med that works. Have you looked at Bernard's list of alternative ideas?

You might tell your story when you feel comfortable, by starting a "New Thread" in the Foyer.

Here is a good place to begin your research: Epilepsy 101 - Part FAQ, Part tips and advice

[Bernard]

Hi Jim, welcome to the forum.

[Birdbomb]

Welcome Jim

Most people here have been on several medications without success. They are also searching for something that works. Sometime it's actually the meds causing MORE problems, besides just the side effects, they can cause more seizure activity. So we look for alternatives. Hopefully, you will find something here that may be benifical to you.

[resslers]

i am here for the first time and would like to talk to anyone that has good info about the earnings you can get when working

[skillefer]

Hi Jim! I'm a school teacher. Not exactly the best paying field, but at least we get benefits like insurance.

[Bernard]

Hi Jim, is your epilepsy controlled? If so, I don't think there is really any issue with work or earnings. If you are uncontrolled, you may have more limited options for finding employment as some jobs are not suitable for people who are prone to seizures. In that case, you might have a look here: good jobs for people with epilepsy

[BuckeyeFan]

When seizure are not controlled, it can be hard to keep a job, but that is why there is financial help out there.

HOWEVER, it is VERY likely that you will eventually get these under control and then most of the income walls will be lowered.

I had my first seizure when I was earning my first college degree (also working full time). I became an Accountant and have had a fairly successful career. I have also earned a second degree and am considering my Masters. Yes, the E has stalled me quite often, but I have been able to succeed financially.

Plenty of people here to cheer you on!!!

[resslers]

i am getting some help from ss buy i am wanting to talk to someone that knows all the rules/tricks to making it work best for me.

right now i am working in a job that pays way less then were i was but i like what i am doing, so that means alot. with the s's being as under control as they have been for some time i am wanting to know about the earning limits that i am on. it is a very hard thing for me because i can go for some time and be better but then i have these times. if you can guide me to someone that i can ask some questions to about this i would appreciate, jim.

[RobinN]

I am sorry Jim, I am unable to help you will this. Perhaps others will be along that can.
I am glad to hear that you like the work that you are doing.

[Bernard]

Is your question related to social security, the ADA (disability act) or something more general? It wasn't clear from your original question.

[resslers]

it has to due with me working now and i know i can only earn $940 a month as of 2008. my question is am i going to be in this earning limit for the rest of my life or does that after so long go away. i have used up all of my trail work periods.

does this give you what you need to answer my question. i almost feel trapped because if i am having a good month and should earn over my limit the ss will stop. because of the way my s's come and go i will then start having a lot of problems again and i will have to start the whole process of getting s started again.

after the problems i had the first go round with dr's,s,insurance etc: that is some them i don't want to go through again. if tyhis still isn't enough get back.

anyone out there that has a good fix for thjis problem i am ready to talk.