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#1
02-10-2008, 08:30 PM
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new hereI am the mother of 2 beautiful children, one healthy beautiful daughter and one handsome son who has epilepsy. Ten Years ago I watched in horror as my son slumped to the floor, his face frozen in a twisted grimace, his body twitching in convulsions. My son has Temporo-occipital seizures which became generalized seizures and absence seizures. He is now 16 and we still have control over his seizures, yet they seem to have changed quite a bit. It will be 2 years March 8, that he hasn't had a grand-mal. But lately they seem to be coming in clusters and complex partial as well as partial. He is on Epival, dilantin and lamictal (Epival and lamictal were recently increased). Have another blood test and eeg in begining of march and pat with his neurologist on the 18th of march, which at this time will be deterimed if a change of meds or something else, which will not be surgery, his neurologist says he is not considering him for surgery, at this point. Well thats it, sorry for blabbing    |
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#3
02-10-2008, 09:23 PM
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| Hi Jasmom, welcome to the forum.  Make yourself at home here. 
__________________ Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback Would you like to help support this forum? |
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#5
02-11-2008, 12:14 AM
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| Welcome JasMom Glad that you joined us. I too have a 16 yr old. She has been having seizures for the last 1.5 yrs. We have an appt in the morning with the EEG Institute to learn more about Neurofeedback. I am open to all alternative therapies. Meds did not work for us. |
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#6
02-11-2008, 03:14 AM
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| Welcome jasmom I think you'll like it here. Lots of parents in of kids with E and TONS of information. And a character or two to make you smile!
__________________  "If you are going through hell, keep going." (Sir Winston Churchill, 1874-1965) Work like you don't need money, Love like you've never been hurt, And dance like no one's watching. |
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#7
02-12-2008, 03:53 AM
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| Jasmom! Welcome to CWE! Kick back and browse around! And sorry to hear that your son's going through more seizures!  But glad you've stopped by here! Hope you find lots of resources and support here!
__________________ Sharon Advocate & Member of  Head Storms - Resource Center "Vujà dé - the feeling you've never been in here before!" |
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