msat1981
New
- Messages
- 27
- Reaction score
- 0
- Points
- 0
Hello!
I've been googling Juvenile Myoclonic Epilepsy and especially Keppra lately.
This forum board seemed like a good place to join.
I'm 28 and was recently diagnosed with JME and recently put on the generic version of keppra. I had my first actual seizure when I was 22 at the doctor office right after a blood draw. I'm a sissy as is with medical stuff so that's why I passed out. I was out 20-30 seconds having a seizure I wake up to a nurse "screaming" at me and holding that salt stuff to my face. I stayed in the same position i was in. When I put my head down on the table and "woke" up after the seizure only thing that was different was my arms were out. What kind of seizure was that??
Anyway I do the EEG which scared the crap out of me because of the strobe light they put in your face. It comes back abnormal so I get put on Tegretol and deal with those side effects for a month. I go on a trip and forgot to pack the Tegretol so I went without it for a week. I hated the side effects so much and my neurologist at the time really didn't explain much to me so I pretty much just said screw it all.
Since then I've had to deal with my mouth twitching when I talked and especially when i would get tounge tied or got nervous. I had other jerks too with my arms and hands, but they went away as I learned the importance of sleep.
Fast foward to this year i noticed the jerks increasing a lot (mainly when I talked) and my hands were starting to do it too a bit more. It stated to scare me I saw a new neurologist and she diagnosed me with JME.
I started the generic keppra two weeks ago I'm on 1000mg I take them together at night before i go to sleep.
Well the agressive/angry part lasted a week but what I have been having a hard time with is I get scared and am freaked out for a few hours every single day. I am way more sensitive to the lighting in my office. Infact I feel like all my senses are more sensitive. During the few hours of feeling odd and scared I feel like anything can happen? Why is that? It's messing me up bad!
Since the jerks were mainly with my mouth I can get through my words a lot better i mean 98% improvment there. But the left side of my mouth area where the jerks would occur feels weird.
Anyway will this pass? The feeling scared and weird and nervous and anxious garbage? help????
I've been googling Juvenile Myoclonic Epilepsy and especially Keppra lately.
This forum board seemed like a good place to join.
I'm 28 and was recently diagnosed with JME and recently put on the generic version of keppra. I had my first actual seizure when I was 22 at the doctor office right after a blood draw. I'm a sissy as is with medical stuff so that's why I passed out. I was out 20-30 seconds having a seizure I wake up to a nurse "screaming" at me and holding that salt stuff to my face. I stayed in the same position i was in. When I put my head down on the table and "woke" up after the seizure only thing that was different was my arms were out. What kind of seizure was that??
Anyway I do the EEG which scared the crap out of me because of the strobe light they put in your face. It comes back abnormal so I get put on Tegretol and deal with those side effects for a month. I go on a trip and forgot to pack the Tegretol so I went without it for a week. I hated the side effects so much and my neurologist at the time really didn't explain much to me so I pretty much just said screw it all.
Since then I've had to deal with my mouth twitching when I talked and especially when i would get tounge tied or got nervous. I had other jerks too with my arms and hands, but they went away as I learned the importance of sleep.
Fast foward to this year i noticed the jerks increasing a lot (mainly when I talked) and my hands were starting to do it too a bit more. It stated to scare me I saw a new neurologist and she diagnosed me with JME.
I started the generic keppra two weeks ago I'm on 1000mg I take them together at night before i go to sleep.
Well the agressive/angry part lasted a week but what I have been having a hard time with is I get scared and am freaked out for a few hours every single day. I am way more sensitive to the lighting in my office. Infact I feel like all my senses are more sensitive. During the few hours of feeling odd and scared I feel like anything can happen? Why is that? It's messing me up bad!
Since the jerks were mainly with my mouth I can get through my words a lot better i mean 98% improvment there. But the left side of my mouth area where the jerks would occur feels weird.
Anyway will this pass? The feeling scared and weird and nervous and anxious garbage? help????