Coping With Epilepsy Medikidz Comic Book Explains Epilepsy
Sponsored Advertisement
 

Go Back   Epilepsy Forum > Our House > The Foyer


Closed Thread
 
LinkBack Thread Tools
  #1  
Old 05-01-2008, 12:17 AM
jen z's Avatar
New Here
 
Join Date: Apr 2008
Posts: 2
Thanks: 0
Thanked 0 Times in 0 Posts

new member


Hello. I'm Jen. I'm 21 years old. I've had seizures since I was 3 and was diagnosed with epilepsy when I was 10. My seizures seem to have steadily gotten worse over the years even though I have been assured many times by several different doctors that the seizures would lessen with time.

I'm not real sure what else to say... I'm new to all of this!
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #2  
Old 05-01-2008, 12:25 AM
ashmstng's Avatar
Weaving the Community Fabric
 
Join Date: Apr 2008
Location: DL, Florida
Posts: 269
Thanks: 5
Thanked 0 Times in 0 Posts
Hello and Welcome to the Forum!

I hope you enjoy it as much as I do. You will meet alot of wonderful people that will understand your situation. So if you have any questions just ask and someone usually has a answer for you. Nice to meet you. Take care and I hope to talk to you more again.
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #3  
Old 05-01-2008, 02:21 AM
RobinN's Avatar
Super Moderator / Super Mom
 
Join Date: Aug 2007
Location: SoCA
Posts: 7,469
Thanks: 61
Thanked 434 Times in 356 Posts
Send a message via Yahoo to RobinN
HI Jen - my daughter started having seizures two years ago in June. I think hers got worse with the medicines we tried.

Now we are doing neurofeedback, and I do believe we have found an answer. I am still knocking on wood every time I say that, but my intuition tells me so.

She also has a very strict nutritional plan that we do our best to have her follow. I think every thing is working in her favor.

I am glad that you joined us. It will get easier for you with each post. I am testament to that.
__________________
Robin
Neurofeedback - Rebecca's Story
Feedback Matters- blog
Knowledge is power and knowledge shared is power multiplied.
-- Bob Noyce
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #4  
Old 05-01-2008, 08:01 AM
Bernard's Avatar
Your Host
Recent Blog: Oh poop

 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 5,727
Thanks: 155
Thanked 595 Times in 268 Posts
Hi Jen, welcome to the forum.

Sometimes, it helps to get proactive. There is a ton of info in these forums. Have a look around and make yourself at home here.
__________________
Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback.

Would you like to help support this forum?

We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners.
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #5  
Old 05-01-2008, 04:45 PM
Account Closed
 
Join Date: Feb 2007
Location: Tampa Bay Region, FL
Posts: 3,452
Thanks: 28
Thanked 19 Times in 14 Posts
Jen!

Welcome to CWE and make yourself a home and
feel free to browse around! Glad to have you here!
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #6  
Old 05-02-2008, 10:11 PM
tinasmom's Avatar
Esteemed Pillar of the Community
 
Join Date: Nov 2007
Location: Janesville, WI
Posts: 636
Thanks: 5
Thanked 1 Time in 1 Post
Hi Jen -

So glad you are here. In all the years that I have been dealing with Epilepsy with my daughter and granddaughter, I have never heard a doctor (and we've been through a lot of doctors) assure us that the seizures would lessen in time. We were told that they could possibly outgrow them. My daughter's seizure's worsened during her teen years and also as an adult. Now, I have realized that we had put too much trust in her doctor and believed everything he said. I have a friend that has the same doctor that was my daughter's last doctor and she is very frustrated with him. Needless to say, because of her insurance, this is the only doctor they will cover. I have been trying to work with her to get referred to another doctor, but it is so hard to get the insurance companies to understand.
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #7  
Old 05-03-2008, 08:36 PM
hawke86's Avatar
Venerable Voice of CWE
 
Join Date: May 2008
Location: San Antonio, TX
Posts: 1,051
Thanks: 0
Thanked 3 Times in 3 Posts
Hi Jen,
Welcome aboard. I'm new here to.
Hawke86
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #8  
Old 05-03-2008, 08:47 PM
hawke86's Avatar
Venerable Voice of CWE
 
Join Date: May 2008
Location: San Antonio, TX
Posts: 1,051
Thanks: 0
Thanked 3 Times in 3 Posts

Hello, new to forum


Hi Sharon,
How are you doing? How is your weekend so far? I'm also here to this site. How is everyone here? I hope I'll enjoy this site. I have had epilepsy since I was about two years old. I'm also learning to deal with other health problems.
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #9  
Old 05-04-2008, 06:39 PM
Account Closed
 
Join Date: Feb 2007
Location: Tampa Bay Region, FL
Posts: 3,452
Thanks: 28
Thanked 19 Times in 14 Posts

Thumbs up


Originally Posted by hawke86 View Post:
Hi Sharon,
How are you doing? How is your weekend so far? I'm also here to this site. How is everyone here? I hope I'll enjoy this site. I have had epilepsy since I was about two years old. I'm also learning to deal with other health problems.
See your PM!

One of these days I'll find out who you are!




Add Post to del.icio.usNetscape this post!Stumble this Post!
  #10  
Old 05-04-2008, 08:04 PM
New Here
 
Join Date: Apr 2008
Posts: 3
Thanks: 0
Thanked 0 Times in 0 Posts
Hi jen z what kind of seizures do you have and what meds are you on. Maybe your meds need changing as different meds cause different siezure patterns. I was on dillantin for 8 years with no seizures but it made my gums bleed and rotted 2 of my teeth. I am now on keppra which I don't like but thats another story. But now I don't go out to it with seizures they are partial the eyes will start seeing things abnormal specially at that time of the month i see colours. It only lasts a minute or so. But since increasing the dosage to stop the seizures with the eyes my hair is now coming out a bit and the neurologist is trying to say its not the meds but I have read on here that a couple of people have had the same thing happen to them after increasing the dosage of keppra. Anyway welcome and I hope that you can find a med suited to you. Can they operate? They say with me that they cannot because it is located right near where the sight nerve is in the brain. Regards grace. Have a nice day.
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #11  
Old 05-05-2008, 12:47 PM
skillefer's Avatar
Super Moderator
 
Join Date: Jan 2008
Location: California
Posts: 2,341
Thanks: 2
Thanked 40 Times in 34 Posts
Hi jen! Welcome to CWE... This is a really friendly group. So feel free to ask any questions.
__________________
"Watch your words, for they become actions.
Watch your actions, for they become habits.
Watch your habits, for they become character.
Watch your character, for it will become your destiny."

Epilepsy 101
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #12  
Old 05-06-2008, 04:55 PM
jen z's Avatar
New Here
 
Join Date: Apr 2008
Posts: 2
Thanks: 0
Thanked 0 Times in 0 Posts
i have had pretty much every kind of seizure... but i mostly have clonic tonic seizures. i just started taking lamictal. but before that i was on depakote from age 9 until i was 20.
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #13  
Old 05-06-2008, 07:34 PM
Venerable Voice of CWE
 
Join Date: Dec 2007
Location: PA.
Posts: 1,389
Thanks: 124
Thanked 50 Times in 43 Posts
Originally Posted by jen z View Post:
i have had pretty much every kind of seizure... but i mostly have clonic tonic seizures. i just started taking lamictal. but before that i was on depakote from age 9 until i was 20.
I've been on Lamictal for over 10 years. I've had excellent seizure control with a combo of that and Mysoline. I know both are associated with osteoporosis, so I've been taking one of those calcium supplements on the side (chocolate chewy ones).
Add Post to del.icio.usNetscape this post!Stumble this Post!
Closed Thread

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On


Similar Threads
Thread Thread Starter Forum Replies Last Post
New Member Hadley The Foyer 29 04-30-2008 11:58 PM
Hi everyone... Im a new member Roxy The Foyer 7 04-25-2008 03:12 PM
new member vmagill The Foyer 15 03-06-2008 10:46 PM
Hello - new member Joe The Foyer 12 02-21-2008 12:03 AM
New Member Richard Lowes The Foyer 11 02-15-2008 11:33 PM


All times are GMT -5. The time now is 07:11 AM.


Powered by vBulletin® - Copyright ©2000 - 2012, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2009, Crawlability, Inc.
Copyright 2005 © Measuring Up. ALL rights reserved.