Coping With Epilepsy Seizure Study
Sponsored Advertisement - Advertise on this site
 

Go Back   Epilepsy Forum > Our House > The Foyer



Closed Thread
 
LinkBack Thread Tools Display Modes
  #1  
Old 03-19-2007, 04:23 PM
Lisa-Marie's Avatar
New Here
 
Join Date: Mar 2007
Location: Ulster, Pennsylvania
Posts: 7
Send a message via AIM to Lisa-Marie Send a message via Yahoo to Lisa-Marie

New member


[color=blue][/color] Hello everyone, my name is Lisa-Marie. I suffered with epilepsy for 31 years myself. Short bio...I was born in Boston and raised in Lynn, Mass. most of my life. I was not officially diagnosed with epilepsy until around the age of four. Doctors thought that my mother was just one of those neurotic worry wart mothers who took their kid to the doctor every time they sneezed or acted funny. So when I was finally diagnosed at around age 4 my parents were not only relieved but crushed at the same time.

I moved from Boston to Pennsylvania back in 1991, met the man next door ( literally ) and were married two years later. My Neurologist here in PA had tried different combinations of medicines to help control my seizures with no success. He referred me to SUNY Upstate Medical Center of Syracuse, New York where I would end up meeting my "three angels" as I refer to them.

After countless tests and Neuropsychological testing I underwent 15-1/2 hours of left mesial temporal lobe surgery on December 15, 1994 where I would have to be awake for approximately 90-95% of my surgery.

I have been completely seizure-free since my surgery thanks to the wonderful doctors in Syracuse, NY. I have been a key speaker for the Epilepsy Foundation on two occasions so far, and have just found a publisher to publish my autobiography which after 17 years off and on of writing it, I finally finished it. My book is going to be out before summer of 2007 and I am very excited.

I have been hosting two chat rooms online for the last twelve years and have counseled well over 1600 people worldwide to date. I am sincerely hoping that once folks read my book their fears and concerns about undergoing brain surgery will drastically diminish. So much has changed since I had my brain surgery over 12 years ago and doctors know so much more now than they did back then.
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #2  
Old 03-19-2007, 07:14 PM
Birdbomb's Avatar
Super Moderator / VNS Guru
 
Join Date: Apr 2005
Location: Las Vegas, Baby!
Posts: 1,822
Interesting...

Plugging your site. For those who have problems with graphics and flashing lights

~~~~
STAY AWAY! ~~~~

Here's a hint, put a link your site in your signature line. Keep up with the websites you are spamming. Get friendly with the natives and then maybe you will be more accepted.

You did the same post on my site 2 years ago.
__________________


"If you are going through hell, keep going."
(Sir Winston Churchill, 1874-1965)

Work like you don't need money,
Love like you've never been hurt,
And dance like no one's watching.
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #3  
Old 03-19-2007, 09:27 PM
Lisa-Marie's Avatar
New Here
 
Join Date: Mar 2007
Location: Ulster, Pennsylvania
Posts: 7
Send a message via AIM to Lisa-Marie Send a message via Yahoo to Lisa-Marie
I changed the background. It does not flash now. My deepest apologies.
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #4  
Old 03-19-2007, 10:30 PM
Nancy's Avatar
Brain Surgery Experience
 
Join Date: Jul 2006
Location: Missouri
Posts: 281
Hi Lisa-Marie I had left temporal lobe surgery in Feb., 2006. That's why I use that avatar.
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #5  
Old 03-19-2007, 10:36 PM
Lisa-Marie's Avatar
New Here
 
Join Date: Mar 2007
Location: Ulster, Pennsylvania
Posts: 7
Send a message via AIM to Lisa-Marie Send a message via Yahoo to Lisa-Marie
Hi Nancy,

Nice to meet you. Was your surgery successful? Where did you have it done...what hospital?

You're the first friendly face I've met here so far. I sure hope there are a lot more friendly people like yourself.
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #6  
Old 03-20-2007, 08:39 AM
Bernard's Avatar
Your Host
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 3,554
Hi Lisa-Marie, welcome to the forum.

Birdbomb's advice regarding advertising in first posts to a forum versus becoming part of a community (and using signatures) is apropos.
__________________
Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #7  
Old 03-20-2007, 09:48 AM
Lisa-Marie's Avatar
New Here
 
Join Date: Mar 2007
Location: Ulster, Pennsylvania
Posts: 7
Send a message via AIM to Lisa-Marie Send a message via Yahoo to Lisa-Marie
Hi Bernard,
Thank you for the warm welcome. It was a simple mistake on my part. Don't worry I don't take it to heart, just as I don't take being suspended until 2023 from one of the groups I once was a member of to heart.

I'm simply trying to help. I've been helping others way too long to take anything to heart or let it bother me.

Again you have my deepest apologies and I hope to meet more friendly people such as yourself.

Lisa-Marie
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #8  
Old 03-20-2007, 11:46 AM
Birdbomb's Avatar
Super Moderator / VNS Guru
 
Join Date: Apr 2005
Location: Las Vegas, Baby!
Posts: 1,822
Since you are the one to bring up personal information and posting it publicly, then I shall respond in kind.

Feb 22 2004, 09:22 AM you posted this on my site as well.


Quote :
Hello all! My name is Lisa-Marie and I had epilepsy for 31 years myself................ educating one person at a time".....Lisa-Marie Kinsman
Until yesterday, your last visit was Jan 17 2006, 05:56 PM and you had made a total of 9 posts.

Most forums have rules about spamming and trolling. This forum is no exception, although Bernard may be a bit more lax than I am. You agree to abide by the rules when you register. It can be violation of rules, considererd spamming and just plain old bad etiquette to be peddeling in your very first post.

I will allow members to post links to their sites but I do not allow them to sell anything. There is nothing wrong with wanting to inform others of your success story but often there is a fine line between information and spamming/trolling. It is up to the site owner to set up boundries as to what will and won't be allowed. Most people have no IDEA how creative and evil spammers can be until the have a popular site.

My post was not to insult but to inform. Forum etiquette is a judgment call. Bernard knows I feel about trolls and spammers.

If your intentions are truely to inform, then you will stick around and we'll get along fine, but then you may just behave like you did on my site, and your account will stay suspended. Your choice.
__________________


"If you are going through hell, keep going."
(Sir Winston Churchill, 1874-1965)

Work like you don't need money,
Love like you've never been hurt,
And dance like no one's watching.
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #9  
Old 03-20-2007, 12:12 PM
Bernard's Avatar
Your Host
 
Join Date: Mar 2005
Location: Friendswood, TX
Posts: 3,554
I'm definitely more easy going than BB, but I have my limits too. I think the point has been made and we can safely move on to more interesting discussion now.
__________________
Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback
Add Post to del.icio.usNetscape this post!Stumble this Post!
  #10  
Old 03-20-2007, 12:32 PM
Birdbomb's Avatar
Super Moderator / VNS Guru
 
Join Date: Apr 2005
Location: Las Vegas, Baby!
Posts: 1,822
Fer sure, Dude!
__________________


"If you are going through hell, keep going."
(Sir Winston Churchill, 1874-1965)

Work like you don't need money,
Love like you've never been hurt,
And dance like no one's watching.
Add Post to del.icio.usNetscape this post!Stumble this Post!
Closed Thread

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are On
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Old Epileptic, New Member hunting_girl The Foyer 12 07-12-2007 12:36 PM
new family member Birdbomb The Lounge 2 06-04-2007 11:48 AM
yet another new member to welcome!! Luggy The Foyer 3 12-03-2006 09:38 AM
new member lor The Foyer 7 01-26-2006 09:02 PM


All times are GMT -5. The time now is 08:15 AM.


Powered by vBulletin® - Copyright ©2000 - 2008, Jelsoft Enterprises Ltd.
Content Relevant URLs by vBSEO ©2008, Crawlability, Inc.
Copyright 2005 © Measuring Up. ALL rights reserved.