Hello. I'm Trish, this is my first time posting. I'll make this a brief story: I'm 36, was diagnosed with JME at the age of 29. I think my first JME symptoms were when I was about 22, but I had no idea what it was until I had my first T-C at 29. My first child was 5 months old at that time. I noticed some other members said that pregnancy exacerbated their seizures. I agree - it certainly did for me. I now have 2 healthy children and I am very thankful for that. I have had some very scary things happen that I've had no control over when I've had seizures. I have also had a lot of embarassing moments (I'm sure we can all relate!).
My husband recently got new medical and prescription insurance. I was shocked to see how much I have to pay for my monthly prescriptions. I am on 600mg of Lamictal per day and 2000mg of Keppra per day. Because of this new insurance, I am going to have to pay $75 per prescription per month. $150 is way beyond our monthly budget and I don't know what to do. (This has tripled from what I was paying in the past). Does anyone have any ideas about less expensive ways to get medication? I could ask my doctor for something less expensive, but my seizures are under control for now and I would hate to mess around with medication and then start to have seizures again. If I miss a couple of doses, it is very likely that I would have another T-C seizure (this has happened in the past unfortunately). So when I say they are under control, that is true as long as I take the medication properly. I have tried other meds in the past (Dilantin, Depakote) with many side effects including a horrible rash (yuck!).
If anyone here has any ideas about what I can do to lower my prescription costs, I would appreciate any advice I can get! Also, has anyone ever asked your doctor to lower your dosage or change medication because of the price? If I can get on lower dosages or down to one med instead of 2, that would definitely help.
Just looking for advice. Thanks for letting me join the group.
Trish
My husband recently got new medical and prescription insurance. I was shocked to see how much I have to pay for my monthly prescriptions. I am on 600mg of Lamictal per day and 2000mg of Keppra per day. Because of this new insurance, I am going to have to pay $75 per prescription per month. $150 is way beyond our monthly budget and I don't know what to do. (This has tripled from what I was paying in the past). Does anyone have any ideas about less expensive ways to get medication? I could ask my doctor for something less expensive, but my seizures are under control for now and I would hate to mess around with medication and then start to have seizures again. If I miss a couple of doses, it is very likely that I would have another T-C seizure (this has happened in the past unfortunately). So when I say they are under control, that is true as long as I take the medication properly. I have tried other meds in the past (Dilantin, Depakote) with many side effects including a horrible rash (yuck!).
If anyone here has any ideas about what I can do to lower my prescription costs, I would appreciate any advice I can get! Also, has anyone ever asked your doctor to lower your dosage or change medication because of the price? If I can get on lower dosages or down to one med instead of 2, that would definitely help.
Just looking for advice. Thanks for letting me join the group.
Trish