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  #1  
Old 08-16-2010, 02:51 PM
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Thumbs up New person!


Hello,my name is Helen,I'm 23, and I'm from Ireland.

I have Junior myoclonic epilepsy at 15 (2 months before big exams! >.<),it's the same epilepsy my Dad has,he was diagnosed at 21.
I was having absence seizures and petit mals months before I had my first grand mal.My dad never had petit mals or absence seizures so my Mum unfortunately thought I was either looking for attention or on drugs.
I've been on too many different drugs to list off and some of them I can remember to be honest.
But at the moment I am on Keppra and Tegretol (my Dad is on Tegretol too) and it seems to be working fine.I was grand mal free for 2 years but had a seizure a month ago.
I suffer from facial neuralgia as well.But my dosage of Tegretol was just upped to help it and it seems to be helping.
I've recently moved from Galway to Sligo with my bf because I am starting a course called Training For Success which is specifically for people with epilepsy to help them get back into the swing of college and build up their confidence when it comes to education,I start next monday and I'm stoked that I was given a place ^_^

That's about it really
I look forward to getting to know loads of people through this forum.

-Helen
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  #2  
Old 08-16-2010, 04:31 PM
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Howdy! ^_^ *looks up* You jumped right in here! Awesome. I'm draggrif and I'm glad you found this place, it's amazing to get to talk to so many people who understand what you're talking about. Stick around a while, it's nice here ^_^
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Old 08-16-2010, 06:30 PM
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Hi Helen, welcome to CWE!

We have a few other members from Ireland here. Always nice to enlarge our global membership! The "Training for Success" course sounds awesome! I don't think I've heard of anything like that here in the U.S.

Just out of curiosity, do you take any supplements for your neuralgia? I've heard anecdotally that Vitamin B12 helps with Facial Neuralgia.

Best,
Nakamova
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Old 08-16-2010, 09:46 PM
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Helen,

Welcome! I'm so glad you are here!

What a wonderful course you are taking. I wish they had something similar here.
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Old 08-17-2010, 06:57 AM
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*waves* No I don't take any supplements for the Neuralgia.
I take Vitamin B12 anyway because I am Vegan,but it doesn't make a difference on the Neuralgia!

The course is apparently it's only kind in the whole of Europe.I was shocked when I heard it as I think so many people will benefit from it.I know I will.
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Old 08-17-2010, 07:20 AM
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Hello Helen and Welcome!!

I wish you all the best in your new course. That sounds really amazing. You will have to let us know how it goes. I am sure a lot people here could really benefit from your experience!
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Old 08-17-2010, 08:42 AM
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Hi Helen, welcome to the forum.

Make yourself at home here.
__________________
Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback.

Would you like to help support this forum?

We recently had a bunch of new neurofeedback practitioners agree to offer CWE members discounts for service. See post #12 for the list of all participating practitioners.
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