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#1
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New person to the forum!! *smiles* Hello all! My name is Anesa and I live in the lonely state of Maine. I am a 25 year old epilepsy patient that recently gotten the VNS stimulator implanted on 12/2005. The reason that I had it inplanted is because I was having breakthrough seizures, even though I was on three different medications at this time. At first, my neurologist wanted me to have part of my brain removed, but once he told me that the possible risks outweighed the bad, I said to my doctor, " No way jose! I would rather take medicine and be a guinea pig for the rest of my life instead of have part of my brain removed." He actually tried to talk me back into the surgery! Thank god my mother has been SO supportive. She gave my doctor a look that would make an egg fry itself! So the doctor mentioned the VNS stimulator and I said sure. Its been such a blessing to me. The doctor wants me to be on the stimulator for another 6 months before he starts to take me off one of my medications. Thank god! If anybody here wants to ask me about my experiences with the VNS stimulator, I would be happy to ask them if I can. Anesa |
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#2
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| Hi Anesa, welcome to the forum! ![]() I think we have another member here from Maine, so it can't be that lonely of a state.
__________________ New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads. Would you like to help support this forum? |
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#3
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hi Anesa and welcome to the forumi havnt been on here very long myself, but are finding it very helpfull hope to chat soon take care from kitty |
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#4
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| Hi Anesa Welcome to the forum. I'm the same as KittyKat. I haven't been here long, but so far it's been brill If you look on the general post I have lots of questions about the VNS. Perhaps you could have a look at it for me and let me know what you think. Many thanks
__________________ Rachel |
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#5
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| Have you visited www.vnsmessageboard.com? We have nearly 9000 posts by almost 600 members. Just about every aspect of the VNS has been discussed at one time or another. You may view most of the forums as a guest but will have to register to post.
__________________ |
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#6
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| Thanks Birdbomb will look into it.
__________________ Rachel |
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#7
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Brain surgery survivor! Hi Anesa, I am a brain surgery survivor! The surgery wasn't bad at all. I had the option of surgery or more pills, & I chose surgery! Yes, they took out a small piece of my brain too, but that was better than the years of pills I had already had, & as I got older I was taking more pills! It is not a decision to be taken lightly, but if either you, or someone you know, does have the option of surgery, either now or in the future, think carefully!!! Your decision may affect not only yourself, but your family too!! |
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#8
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| hi all...im new to the forum, just found it and happy to be here! |
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#9
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| Hi merlotte, welcome to the forum.
__________________ New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads. Would you like to help support this forum? |
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#10
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| Hello, Yup there is another memeber from Maine. That would be me. Anesa, were do you live in Maine? I live in Westbrook, next town over from Portland. I'm glad your VNS is working for you. Who put it in?
__________________ seizure since age 12, focal resection 1992, VNS 2002 removed 2003. Lamictal 400mg, Topamax 100mg daily. |
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#11
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| UPDATE Almost 800 members and nearly 14,000 posts! Ya'll drop by and visit, now, ya hear!
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#12
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#13
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| Welcome to all the newbies ,Nice meeting you ,looking forward to exchanging life experiences with you. Riva |
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#14
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| A warm and hearty welcome to all of our NEW FOLKS who have joined with us! We hope you find us not only informative, but also a place of refuge as well as a place to ask questions and find answers. |
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| Thread | Thread Starter | Forum | Replies | Last Post |
| Another new person! | louie | The Foyer | 2 | 01-20-2007 07:47 AM |