Newbie Here

[shelly77]

Hi, I was wondering how many of you are awakened by auditory hallucinations. Is it common?

I find myself waking up to what sounds like my radio alarm going off but when I reach out to turn it off I notice it's not even close to the time I am to be awakened. I don't think I'm having a seizure although I do wake up a bit confused and with a head-ache every once in awhile in conjunction w/the muffled music.

[RobinN]

Hi Shelly - Welcome to CWE
I don't have seizures, but I have had experiences like this occasionally. Not often, but I do remember getting up because I thought I have heard something. Could have been in my dream I guess.

With the confusion and the headache, I would surely want this checked out.
What does your doctor say?

[speber]

Wow!...bizarre! I don't think it's 'common' but I won't say it's 'unheard of' either.

Do you suffer from other hallucinations or seizures?
What medications are you taking?

Peace
Speber

[shelly77]

I've been epileptic since I was 7 and am now 42. I currently am taking Keppra and Lamical for staring and grand mal seizures. In the past I was on Dilantin, Zarontin, phenobarbital, Neurontin, Topamax and few others I can't remember at the moment. I had a head injury at the age of 7 and that is about the time I started having the staring seizures which then spread from the staring seizures into full blown grand mals.

This thing with the music comes and goes and it wakes me out of a dead sleep and it's very disconcerting. The last time I told my doc about this she thought I might be experiencing some sort of psychosis?! I was like...huh?? At my next appointment I told her I was fine, which I was but every now and again this comes back.

Is it possible for epilepsy to put you into a mild form of psychosis?

[Bernard]

Hi Shelly, welcome to the forum.

I find myself waking up to what sounds like my radio alarm going off but when I reach out to turn it off I notice it's not even close to the time I am to be awakened. I don't think I'm having a seizure although I do wake up a bit confused and with a head-ache every once in awhile in conjunction w/the muffled music.

They could well be simple partial seizures (aka auras). A sleep study (video EEG) might be able to verify that.

[brain]

Hi, I was wondering how many of you are awakened by auditory hallucinations. Is it common?

I find myself waking up to what sounds like my radio alarm going off but when I reach out to turn it off I notice it's not even close to the time I am to be awakened. I don't think I'm having a seizure although I do wake up a bit confused and with a head-ache every once in awhile in conjunction w/the muffled music.

Shelly!

Welcome to CWE! And it could be what Bernard
had implied below, or it could have been an aura,
or it could have been a complex partial.

The best way to know is to have like Bernard had
implied, is a sleep EEG, or going in for a video EEG if
you experience this more frequently.

It's a good idea to log this and with dates and
keep a diary/journal if all possible so such things
can be tracked down and monitored - so you would
know how frequent you experience these things,
and go over with them with the Neurologist or
Epileptologist or Doctor, whomever is treating you,
and be sure to visit the links that Bernard had
provided below as well.

I've experienced what you have described
above, so it's not unusual, but to you what
might be considered 'new', is actually 'old' news
to me.

EEG is the way to go as implied.

[RobinN]

Is it possible for epilepsy to put you into a mild form of psychosis?

I read a lot of other group lists, and there is a common thread to them. A lot can go on within your body that affects your brain. For example you could have a metal toxicity, you could be deficient of a mineral, you could have an unhealthy intestinal tract, you could have a virus that is laying dormant in your system. The doctors have no patience to try to figure out what is going on with your individual system. They find it much easier to numb you up by putting you on a multitude of drugs. They call it medicine, but in my opinion, they are not trying to figure out the root cause of the disorder.

I know for a fact that magnesium helps to relieve ringing in the ears. So what else is the cause of your "sounds"? I think you are on the right path to seek answers for yourself. To say that it is psychosis is so silly. That doctor isn't very creative. You know it wasn't so long ago that they use to lock women up in rooms upstairs, because they had PMS. It wasn't but just about 150 yrs ago that doctors thought it was a good idea to rub bloody towels from one patient to another because they thought it was a good idea to spread the pus.

We need to teach them gently that the final chapter hasn't been written yet. Someone rewrote the autism chapter recently. We will soon do the same for Epilepsy.