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#1
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#2
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| Hi Guitargirl - welcome to CWE My daughter started having seizures at the age of 14. It certainly is not uncommon to have seizures begin at this age. The hormonal issues that females go through are also felt by the male species, even though they would like to think not. They have also been known to begin after a known head trauma (concussion), or even months, not sure if I read even years later (that fact can be researched). I believe that medication made my daughters seizures much worse. So do suggest that they keep records of increases in meds and increases in seizures. Hard to convince the doctors of this though. Except why keep taking a med if it isn't helping. My opinion of course. My daughter is doing neurofeedback therapy with great results. Do be careful of making it be more than what it is. Some thought my daughter was under too much stress, couldn't cope, and thought that all she needed was therapy. Thankfully the therapist believed that there was something organic occurring and that she needed more than just conventional medicine. Nutritional changes, hormonal balance, therapy, and NFB have been the direction that has been improving her health. You are a wonderful aunt to care so much.
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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#3
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Welcome Guitar Girl This place is great because you've got all sorts of relatives as well as people who have seizures that are great at sharing experiences & information. They're also extremely supportive of each other here. I'm guessing from your name you'd probably appreciate Spebers Auditorium on this site. I (& many others here) seem to have an interest in playing &/or listening to music so check it out. I know he's got an interest on how music & sound might effect seizures (I do too as I love music). It looks like your nephew might have some interesting experiences to contribute. Eric
__________________ "It's no longer a question of staying healthy. It's a question of finding a sickness you like." -Jackie Mason |
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#4
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Hello Guitar girl.just thught i'd pop in and say Hi. |
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#5
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#6
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| Hi guitargirl, welcome to the forum.
__________________ New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads. Would you like to help support this forum? |
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#7
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#8
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Thanks for the welcome! Good to hear from all of you! I think it will take me a while to figure out how to navigate this amazing site efficiently, but in the meantime I'll enjoy stumbling into some of your amazing posts... Did someone mention somewhere that there's an area for kids to talk to each other?guitargirl |
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#9
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#10
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__________________ New to CWE? I suggest reading the proactive prescription and epilepsy 101 threads. Also check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback. More great stuff can be found in the list of the best forum threads. Would you like to help support this forum? |
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#11
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checking out the Loft Thanks for that direction. I wonder if my nephew would be into that. I'm thinking it can be a lonely world without a community that relates to all this. |
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#12
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| I would think so, but my daughter has yet to take an interest. Guess she really doesn't want to participate somewhere that everyone knows far too much about her. I don't really blame her.
__________________ Robin Neurofeedback - Rebecca's Story Feedback Matters- blog Knowledge is power and knowledge shared is power multiplied. -- Bob Noyce |
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#13
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that makes good sense Thanks for that reminder. Makes good sense. |
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#14
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| Hi guitargirl, Welcome to the forum. I hope you enjoy it here. This is a good forum. Again Welcome.
__________________ Have a good day. Hawke |
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#15
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| Hello Guitargirl - Your nephew has a special aunt. This forum has helped me with many issues and sometimes its just good to know that there is always somewhere you can blow off steam when needed.
__________________ Laura: Mother of Tina 11/30/81 to 8/3/06 (SUDEP). Grandmother of Nicole 8/30/01 complex partial seizures (hereditary), Lamictal"I put my hand in your hand so you know that you are not alone." |
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#16
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| Hello Guitargirl welcome to you and your nephew. |
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#17
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| Aloha Guitargirl, You have landed in an excellent place! Great info and great people It has become a real lifeline for me |
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