Newbie SPS diagnosed

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I am 45 yrs old and have just been diagnosed with SPS based on my description to ep specialists at hospital.Just had CT scan and EEG last wk awaiting results. Had to surrender driving licence so a little cheesed off. My sz only happen when I play racket ball and it doesn't happen everytime I play or how hard or easy the game is so a little strange,anyone else have anything similar.
j.j.
 
Hi j.j., welcome to the forum. :hello:

Sorry about the recent diagnosis, but I think you will find that your situation is not as unique as you might think. There are lots of people who start experiencing seizures well into adulthood.

I'm guessing you found us as the start of a journey to find out more about the world of epilepsy. Well, have a look around and ask any questions you like. We'll try to answer them as best we can. :)
 
Hi JJ welcome to the forum!!!!!!!Epilpesy is as unique as you think, not too many pple have the same type of szs,thou they may effect the same part of the brian. Be patient as your Dr reviews your case and gets a handle on the best way to treat you.

I myself have never driven, fear even when I was controlled. So I can only imagine what its like to lose your license.

Nice meeting you !!!!!!! If you have a ny questions about homeopathy, or the GUard diet I am following both be glad to answer.

Riva
 
Hi Bernard, Thanks for your reply,I do have lots of questions to ask and and emotions to deal with . My head is spinning at times trying to deal with this, in time everything will work out I'm sure. This is the first time I've joined a forum so I hope I am posting this in the right place bit useless with computers you see.
j.j.
 
Hi J.J

You'll find the people on these forums really nice & very helpful. I've noticed that if you are ever unsure of anything about either this forum or epilepsy & have any questions then there is usualy someone who is always happy to help out :). As you go along it will get easier to use the forum .
 
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Yeah, don't be intimidated about the forum system. You're doing great. You'll be navigating the site like an old pro in no time. :)
 
sps

My SPS symptoms are I have the depersonalization where I don't feel in myself and then the same memory/emotion/fear at the begining of it,the problem is I recognize the feeling as its happening but can't remember it to describe it to the docs.I'm lucky I only go a little vague and don't loose awareness when I sz.My doctor hasn't given me any meds as he wants to see if I have had a cluster of sz and they may stop.The problem for me and I'm sure everyone with e is the not knowing if it is going to stop. Does anyone know why sz should start age 45 or if SPS can progress and change to different type of sz .
 
Why they start? Don't know. There are many possibilities I suppose.

Can they progress and change? Yes. Seizure patterns can change for the worse. It's usually called kindling. It's kind of like a reverse neurofeedback - your brain starts learning how to have seizures as a habit and they start becoming more frequent. If they generalize (move to other parts of the brain), you could experience other types of seizures.
 
Thanks for your reply Bernard,
I feel a bit like a fraud as my sz only happen during my racketball so people say well don't play sport and they won't happen,but I have always played sport to a good level and it is a huge part of my life and to stop would be a massive decision for me.Obviously if things get worse I would have to reconsider.I have had 10 sz so far since March the last one 20th July.
Do doctors put you on meds to prevent sz generalizing or do they wait to see what happens.
 
Have you read the Mahjong Epilepsy thread? Seems like your situation has some parallels.

Do doctors put you on meds to prevent sz generalizing or do they wait to see what happens?
Click to expand...

Depends on the doctor, the patient, and the seizures I suppose.
 
Hi J.J.

I've had seizures of different kinds since i was 12. My epilepsy is hereditary. I started with petite mals (which I think is what you are getting), and now have Grand-mals (I did have them in sets at some point, but now have realized they are linked to my hormones. At 45 years old, you could be having this also.. Men have hormones too, although not the same as women.

Keep a log of your seizures and who, what, where, when, ect. Note the foods you eat, and the times your seizures occur. Many people with epilepsy will have trouble with certain times of the year (for me it's November) and note when the stress is the highest. If it is during your racketball, I get those same things after a heavy workout, but I am able to control myself. I have to stop what I'm doing for a moment, but then my brian catches up to my body and all's well again. This will help your Dr.'s greatly.

I also recommend (which I cannot legally do, since I'm not a Dr.) that you curve your appetite for sugars, stress, and racketball for a while and see if this makes a difference. If the only thing you have to do is play once in a while, or not at all, is it worth it to have seizures? I also took up YOGA and it helps A LOT.
 
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