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  #1  
Old 02-23-2008, 11:51 PM
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Saying bye & thank you !


I don't have time to be here & contribute - so I don't feel it's really fair for me to be here when I'm not giving anything. Thanks very much - you all are great. Take care !!
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  #2  
Old 02-24-2008, 12:12 AM
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Smile



We don't say Bye here! LOL!
We say HI!

Zuri - you're more than welcomed
to make yourself a home here,
you don't have to contribute to
anything, and you're welcomed
to come and go as much as you
wish!

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  #3  
Old 02-24-2008, 08:17 AM
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Zuri .... I don't "give" .... I can't. I don't know how. I listen a lot and, yes, I do talk but but it's just chatting. I'm trying to learn and get relief from this epilepsy stuff.
I sure hope you'll hang around when you have any free time.
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  #4  
Old 02-24-2008, 10:16 AM
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Hi Zuri, there is no requirement for contributing here. Most forums (this one included) have roughly 5-10 times more "lurkers" than active members - that is people who read regularly without participating (or even registering an account).

You are welcome to visit, read or say hi as you like.
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Check out this chart of alternative epilepsy treatments and this page on EEG Neurofeedback
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  #5  
Old 02-24-2008, 02:09 PM
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Cool Peace Zuri!...


I hope you come back to visit often!

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Music\auditory Stimulus and the Epileptic Brain...List of music/epilepsy related links...CWE Members can also visit Speber's Auditorium where they can vote on how different music affects them in simple polls.
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Old 02-24-2008, 03:01 PM
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Location: Las Vegas, Baby!
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Please don't leave

There is so much to share!


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"If you are going through hell, keep going."
(Sir Winston Churchill, 1874-1965)

Work like you don't need money,
Love like you've never been hurt,
And dance like no one's watching.
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  #7  
Old 02-27-2008, 04:32 PM
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thanks everyone.

I was ordered to go to emergency last nite for the thyroid stuff (chest tightness). My levels doubled from last weeks & last nite's were doubled again. Im pretty frustrated. I take my medication. The doctor didnt even look at my chart before guessing I have graves - we (my cousin & me) asked him how he knew & he said my eyes. Thats changing.

The hospital stay before that wasnt only mainly partial seizures that they saw but very low blood sugars & parasomnias. Im trying to juggle things & Im feeling very overwhelmed. I thought that w/ my thyroid med increase my levels would come down not go up. Ive had to start beta blockers which I didnt want to do but they are saying I dont have much choice. I slept last night w/ the help of ativan. I really wanted to be euthyroid & I couldnt believe they doubled again. Now I have to see an eye doctor. I wanted this to be simple lol.

Last edited by Zuri; 02-27-2008 at 04:34 PM.
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  #8  
Old 02-27-2008, 04:36 PM
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Does anyone here have graves' wl thyroid eye disease ?
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Old 02-27-2008, 05:03 PM
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Nope...no clue whatsoever.....I take medicine for underactive thyroid.
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  #10  
Old 02-27-2008, 05:59 PM
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Originally Posted by skillefer View Post:
Nope...no clue whatsoever.....I take medicine for underactive thyroid.
Well maybe we can trade hormones lol
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  #11  
Old 02-28-2008, 04:23 AM
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Originally Posted by Zuri View Post:
Well maybe we can trade hormones lol

Don't you mean HORROR-MONES?




But HOW are you feeling today? So sorry
to hear you hadn't been feeling well! There's
folks out there who have Grave's.

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  #12  
Old 02-28-2008, 07:29 AM
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Sorry Zuri


Keep your chin up Zuri.

I have low thyroid, so I am not much help either. I do have a question. I went into the hospital a couple of years ago with chest pain and fatigue. Well, they obviously checked out my heart from top to bottom and it was fine. It turned out that my thyroid was low, along with low iron, low B12, and evidence that I had something called Coxsackie virus. ALL of which could cause the fatigue in addition to my anti-epileptic drugs.

My question is that I had never heard of thyroid tied to chest tightness before. Was this like heart pain or more like a breathing/asthma tightness??

Remember you are always welcome here. Even if you can only stop in once a month or so. Just knock and I will open the door.
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  #13  
Old 02-28-2008, 10:20 AM
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LOL....good one.
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Watch your actions, for they become habits.
Watch your habits, for they become character.
Watch your character, for it will become your destiny."
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  #14  
Old 02-28-2008, 12:58 PM
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I used my inhaler for it to not work - & my regular doc (who I spoke to on the phone) thought it was related to my heart. Something about needing my meds to be so high & still havent gotten me euthyoid (which is what I cant believe) - so I am now on a beta blocker. Something about the antibody causing a lot of these symptoms.

It was more like asthma tightness - no pain. & J had tightness on the left side of my neck.

Im only (almost)28. Heart stuff is possible w/ graves' but Im still young.

But they guessed graves as I walked in the door b/c of my eyes lol.
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