Hi everyone, I just had my second grand mal seizure while I was camping on Sunday. Fortunately my wife and family were nearby and they rushed to find help and drove like maniacs down the mountain to meet an aid car half way. I was rushed to the ER in a small town. The whole experience was pretty terrifying for me though. I remember telling my wife I was having trouble focusing and then started hallucinating/ seeing lights and shapes, then I guess I collapsed and started convulsing. When I came to I was being rushed down the mountain roads in a car with my wife, mother and sister. I was saying I thought I was dying and they were somehow being calm and telling me I was okay. My head felt like it was going to split open and my body hurt all over and I was nauseous and dizzy. After and EKG and CT scan and some IV fluids at the ER they released me and we had to take the long drive back to Seattle.
I am trying to get an appointment/referral to a neurologist but it has been frustrating. The first neurology department I got referred to doesn't have an opening for almost a month. I am trying to get referred somewhere else in the hopes that I can see someone sooner. I am really worried that it will happen again soon or that something bigger is wrong with my brain or body. Loosing consciousness in that way and coming to only a little at a time and thinking I am dying is a pretty traumatic experience, day to day stuff doesn't seem to matter much right now. It's really difficult working now, I don't really care much about what I am doing and wish I didn't have to go. I took the day after off to recover but I am taking today off again as PTO because i am just too anxious and worried and still feel a little tired and dizzy. I am quite worried about the dizziness because it came before both times I've had seizures, the first time being 11 years ago.
I know many of you have seizures much more often so I'm sorry if I seem to be complaining about a more minor experience. But I have dealt with dizziness and light headedness ever since my first seizure and have seen many different doctors about it, but they never found anything wrong with me. I had chocked most of it down to anxiety recently but now that I've had another seizure it's got me all worried about it again. Sorry if I am going on about this, I just have so many thoughts that are going unanswered. My wife has also been ill with a worsening of Gastroperesis for the better part of this year and it has already been taxing on us. It is a difficult balance to try and be strong for each other when we are both feeling dismayed by what has happened. Any advice or response would be appreciated. Thanks in advance.
I am trying to get an appointment/referral to a neurologist but it has been frustrating. The first neurology department I got referred to doesn't have an opening for almost a month. I am trying to get referred somewhere else in the hopes that I can see someone sooner. I am really worried that it will happen again soon or that something bigger is wrong with my brain or body. Loosing consciousness in that way and coming to only a little at a time and thinking I am dying is a pretty traumatic experience, day to day stuff doesn't seem to matter much right now. It's really difficult working now, I don't really care much about what I am doing and wish I didn't have to go. I took the day after off to recover but I am taking today off again as PTO because i am just too anxious and worried and still feel a little tired and dizzy. I am quite worried about the dizziness because it came before both times I've had seizures, the first time being 11 years ago.
I know many of you have seizures much more often so I'm sorry if I seem to be complaining about a more minor experience. But I have dealt with dizziness and light headedness ever since my first seizure and have seen many different doctors about it, but they never found anything wrong with me. I had chocked most of it down to anxiety recently but now that I've had another seizure it's got me all worried about it again. Sorry if I am going on about this, I just have so many thoughts that are going unanswered. My wife has also been ill with a worsening of Gastroperesis for the better part of this year and it has already been taxing on us. It is a difficult balance to try and be strong for each other when we are both feeling dismayed by what has happened. Any advice or response would be appreciated. Thanks in advance.