Sorry I'm late!...um?...HELLO!

[speber]

My Apologies!!!!:
First of all, SORRY EVERYONE for not coming here first with a proper introduction!...I have found myself going 1000 miles an hour these days and, while I MEANT to do it, it just wasn't getting done!...sorry!

My Bio:
Okay, I'm an Austin, TX musician\songwriter\support-department specialist\computer programmer with the big E for 32+ years now. I'm on Zonegran, Trileptal, Vitamin supplements, and a regimen of 'beneficial' music of my own doing (research of my own here...thank God for iPods!).


My Story:
Do you remember your first seize?...well I sure do! I was on my families couch on a Satuday morning watching 'Speed Racer' (can you say 'Japanese animation'?) at the age of 8. The next thing I knew I was looking at the roof of an ambulance? Most of you know the rest I'm sure. I have run a gambit of multiple waking mixed GTC\absence seizures during the daytime to nocturnal GTC seizures oer my journey and have settled lately into once or twice a year GTC's depending on how sick I let myself get. I have been able to go 'seizure-free' for 2 1/2 years but only because I did NOT get sick during that time. Unfortunately that has been awhile back now...I believe 9 years ago. Anyway, it sure beats multiple seizures during a waking day!

My Thang:
On a positive note, I'm BIG into researching ALTERNATIVE THERAPIES for epilepsy right now. That (and the great atmosphere) is what brought me here! Bernard (and many others) have done a great job so far spreading the word about alternatives...I want to let others know about music and its potential.

[Bernard]

Well, thanks and I'm glad you made it here to share your experiences with music/sounds.

Let me extend an official welcome to the forum then:

I went to school @ UT. I sure did enjoy my time in Austin.

[POSITIVEPERSON]

Thanks to Bernard and Stacy I know their are other ways to live with my life with epilepsy. I got epilepsy when I was 11 yrs old and the dr was tough older, German man and he made sure I understood that as long as I took my meds I would be safe. SO when I ran out of meds thanks to other Drs I was scared. But I didn't let that stop me from living. Life is about living and I am going to enjoy my life to the fullest even with epilepsy. SO I looked at alternatives such as homeopathy and than finally adding the Gard diet so I can get off the last tab of mysoline.
Its nice meeting you and I am looking forward to getting to know you better

Riva

[Bernard]

Thanks to Bernard and Stacy I know their are other ways to live with my life with epilepsy.

[Bernard]

Oh man... I should just go to bed....

[Birdbomb]

And in keeping with the spirit!


Originally Posted by POSITIVEPERSON :

Thanks to Bernard and Stacy I know their are other ways to live with my life with epilepsy.

[Birdbomb]

Read How to

When you format a video, I noticed that you cannot edit it. But you can preview it

If at first you don't succeed...

Ctrl Alt Delete, throw computer against the wall!

[speber]

Okay, here goes...keep in mind the video is NOT the point in this song!







FINALLY!!!!!!!!!!

[POSITIVEPERSON]

I got my first grand mal in 7th grade after lunch ,I was talking to my best friend and had a seizure. They called my parents and they came and got me and I first went to the GP than a
nuero for an eeg. I was put on dilantin but had a allergic reaction. Was swithced to zarontion and mesantion.

When I was 25 I started to use acupuncture for the side effects I had from depkeine. But
I never believed I could get off all my meds . I never heard of nuerofeedback,or homeopathy , diet for epilepsy.

BUT AGING HAS IT ADVANATAGES , YOU BECOME ALITTLE BIT MORE OPEN MINDED AND WILLING TO TRY NEW THINGS.

Riva